>My name is Ellen Peck, and my husband, aged 78, was just diagnosed with PD.
>He doesn't feel well. He has been on the generic for Sinemet for two
>weeks. He has lost all appetite and eats almost nothing. He is forcing
>himself when he gets anything down. He says food tastes funny and eating
>repugnant. Does not tolerate the salty taste.
>He just lies around, going up and down stairs about twice per day. He has
>even stopped putting the TV on.
This sound like what my dad went through - we called the neuro - but he
wanted him to stay on it - reduced the dose - increased the dose - nothing
helped. He was nauseaous ALL the time - they even gave him pills for that
but they didn't help either. He lost about 30 lbs in 5 months.
My mom would give him Boost to get some calories in him.
But besides that he lost all intersest in ANYTHING. NO TV sports - newspapers
nothing. All he would say is that he felt "SICK".
He was on antidepressants - but I think all they did was make him
sleepy.
I don't think the dr didn't really beleived it was the SInemet - but we
were living with him ! We know how he was before.
Anyway - last week he finally gave him Mirapex (and cut Sinemet by half a
tablet per day_) - and I have to say with the first PILL - we noticed a change.
He actually ASKED for a doughnut ! My mom and I looked at each other in shock !
(we'd have gone to the end of the earth to get him one - since he hadn't asked
for (or enjoyed) food - or ate without complaining for MONTHS).
In one week on Mirapex - he's eating better - no nausea - more interest
in things like the newpaper - sports - TALKING (never got more than
mono-syllabic anwers before this). Its truely amazing !
His legs still hurt and walking isn't the best and he still gets tired -
but this is MUCH better than before - we hope/pray it will continue to
improve.
So maybe your neuro will try it - especially since he was just diagnosed -
why jump right into Sinemet.
Keep us posted !
Donna
(daughter of PD dad 74/dg 1/97 )
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- Donna Bassolino-Klimas, Ph.D.
Bristol Myers Squibb Pharma. Res. Inst.
Department of Macromolecular Structure
P.O. Box 4000 Room H3812
Princeton, N.J. 08543 4000
(609) 252 4413
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