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I was just musing about my ten years as a Parkie, then I thought, I must
keep things in perspective. I wrote this a while bact to give to "John". =
By
the way, I started Mirapex a week ago, and i have not had a significant
"OFF" time this last week. In fact I hardly have offs at all. I think
Mirapex is the best thing since sliced bread. Now here is the piece I wro=
te
for "John"

The Date is may 8, 1988. I am having my first appointment with a Neuro, D=
r.
Barton. After doing a few tests and watching me walk back and forth up an=
d
down the hall he finally said, "Looks like Parkinson=92s to me." "Do you =
want
the medication?( he meant Sinemet)" I said, not knowing any better "SURE.=
"
These symptoms that had been annoying me for about a year now had a name,=
 I
thought to myself. I have Parkinson=92s disease. Then I went to the check=
 out
desk where Sue, my wife worked. She asked " Well what is it?" Then I said
it aloud for the first time, "I HAVE PARKINSON=92S DISEASE" "But I=92ve g=
ot the
medication for it." I quickly said, as if that was going to take care of
it. It really had not hit me yet that this was a life sentence. I
desperately needed an experienced Parkie who had been through the battles
to tell me there is life after diagnosis.
I took my pills which masked my symptoms and didn=92t tell anyone for abo=
ut a
year

Now here I am nine and a half years later having gone through some of the
most debilitating dyskinesia that anyone could imagine and finally in
August of 1995 I had a bilateral Pallidotomy. The dyskinesia essentially
ended but my Pd continues to work its ways in my body and I seek to start
Mirapex in a few days . Maybe it will help some of the "offs" and "ons"
that plague me at some time every day. So it is in the life of a parkie.
Just another day to thank God that I only have PD. Two months ago my
boyhood best friend died of Lung Cancer. We need to put things in
perspective. Then I think

when I spit from the 26th floor
And it floats with the breeze to the ground
Does it fall upon hats or on white Persian cats
or on heads with a pity pat sound
I used to think life was a bore=20
but I don=92t think that any more
as I count up the hits
and smile as I miss
and spit from the 26th floor.
(Shel Silverstein in WHERE THE SIDEWALK ENDS)