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HI Bob, Welcome to the list. I am glad you are following up in a movement disorders clinic. Where are you going and where do you live. Again welcome and good luck. Charlie Monacci, Robert wrote: > > Hello All, > > This is my first contact ever with a PWP. Barbara suggested that > I introduce myself. I am 60, diagnosed in the Fall of 1991, began > Sinemet in April of 92 and switched to Sinemet CR a month later. My > neuro has a few PD patients and does not specialize in this area. Since > I wanted to manage my own case, this was fine (perhaps stupid) with me. > He suggests alternative meds but he lets it be my choice without getting > upset with me. My philosophy has been from the outset to minimize > quantity and types of meds, accepting some loss of function as long as I > can get along. Presently, I take a 1/2 of 50/200 , six times a day. > Another 1/2 or two if I must go out for the evening. I did concede to go > to 10 mgs of Eldepryl due to it's advertised effect of maybe slowing the > dopamine loss. My purpose in minimizing meds was to prolong immunity and > side effects as long as possible. I am due to retire within a few months > and look forward to it as allowing me the time to follow a rigorous > exercise program although I' m not sure what that would be. I would > certainly appreciate suggestions. I currently lift weights a half hour > per day and use an exercise bike intermittently. I have frequent > prolonged thumb and toe pain (have heard and I am interested in trying > magnets). My day goes fairly smoothly but when off , I shuffle and > cannot write at all efficiently etc, etc. I finally located a support > group nearby and will join soon. I had planned to go to a neuro at a PD > center some distance away when retired but when I inquired , the nurse > in charge asked my problems. I answered that I had trouble getting > started in the morning. She suggested a Sinemet immediately upon > awaking. I adjusted my six half pill schedule to earlier and shorter > interval for the first two and it has worked. I have been monitoring the > List conversation for the past two days and have learned a great deal. > I read newsletters and view symposium videos etc. Sorry to be so lengthy > and I promise hereafter, I will be brief. It's great to be with other > PWP's. > > Bob > [log in to unmask] -- CHARLES T. MEYER, M.D. Middleton, WI [log in to unmask]