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Hum, since you've "said" how you feel... guess it's ok for me to reciprocate....How sad.... do you really "really" feel like that ? .... 1-3 posting doesn't constitue 20-30 daily.... but be that as it may.... I understand your "frustration" at having to read about something of this nature. In a perfect world this would of been taken care of immediately after it's occurance .... by "housekeeping" ...either swept under the rug or by a thorough investigation/action.... but then again if this "perfect" world existed this wouldn't of occured at all. I've only been on the "wonderfull" list for a short time (btw it's very informative IMHO)...but for 7 years I've been in this "part" of this "side" of the world... the one of Doctors, Specialists, Medications, Ins. claims, sleepless nights, constantly worrying about the boys, getting bills paid and hanging on to my own sanity tooth and nail. This thing that happened with Ivan .... he's not the only one this has happened to.... it's not a "singular occurance" ... I suspect it happens to people across all the "disease/disorders" spectrums.... I know it's happened here "in my own back yard" several times. It would be nice to have "all" the Ivan's in the world's problems resovled either by reimbursment or "services" rendered .... the thing that would be "better" is to have some sort of "action" that can be taken to prevent/negate incedences like this. Somedays I feel like "I'm" at the mercy of not only this "disease+" but also that of the Doctors too... it's mighty irritating to have an appointment scheduled at 10am and not get seen untill 1pm <thoughts of "billing" the doctors for time spent in the waiting rooms...what a hoot that would be:> , or the "services/suppliers" like wheelchair repairs being quoted as taking 1-2 weeks ending up being 4-6 months <and your darn lucky if it's fixed right that first time>, even orthodics ... afo's quoted as being ready by X date ...and poof "they aren't" maybe the first of next week .... Goodness it's this type of "occurances" that need to be addressed .... it's not just a "money" thing .... it's a "respect issue" too. It's not just an "Ivan" thing .... that's just the "surface" dust, a spring board into deeper issues..... at least that's "how" I feel about it. I would never attempt to speak for anyone other than myself so I guess here is where I've typed a "disclaimer" ... I'll be glad to help a bit ... I'll offer to set up a webpage for/about Ivan ... and you could "respond" to it in the manner that "you" see fit if you wanted to do that... I'd suggested a 2 week period time frame and to help cut down on the "flaming" of the "bandwidth/procrastination/giveitup/supportive" issues here on this list about all this. If I had a magic wand I'd use it to resolve this "thing" but all I can do is be here willing to listen and participate in this "support" list and do what little I can to help others too. I have to follow my own heart in this and be true to myself... that's just the way I am... I'm not saying "I" am right .... just that I'm doing what "I" feel is right.... Just my "own" 2 cents ... my abestos suit is in the cleaners so if you've a "need" to flame .... remember I'm only 5 feet tall... wouldn't want any "shots" to miss .... Take care and best wishes from an Elf in TN...Romona Elf wife to Tony (my hero), and mom to Tori (age 9, nda), Zach (age 7, multichallenged), Cory (age5, multichallenged). The boys have no definative Dx but several labels... nystagmus, strubismus, Dystonia, Parkinsonism, Asthma, Execma, Hypotonia, Spasticity....ect Collectively the Dystonia/Parkinsonism effects the boys from eyes to toes and progressing steadily. Currently Zach's taking Sinemet, Lodosyn and Cory is taking Gabapectin and just started on a trial period of Lecithin. He's also had 3 rounds of Botox, uses a walker or WC for mobility http://members.aol.com/Elf808/index.html Moderator for the Dystkids List(ette) for kids who have Dystonia and/or family members with Movement disorders.