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On Wed 22 Oct, jim and emily jackson wrote: > Donna: My husband Jim, still early in disease progression, tried to titrate > up to 1.5mg mirapex (after eliminating sinemet completely--he had only > taken it a couple of months, and our neuro is of the > 'better-save-it-for-later school-- and reducing Eldepryl). The higher dose > of Mirapex made him feel so "sick" (I think he means "overmedicated") he > dropped back to .75 daily after only a week at the "theraupeutic" dosage. > He can handle that OK. Listmembers responded to my concerns and said, > essentially, 'why mess with a good thing if it works?'. Now he is right on > the edge of needing something more--we don't know what it would be, tho: > try upping the Mirapex again? Add a little Sinemet? Increase Eldepryl > from the one tab/day he now takes back to two? His tremors aren't too bad > most of the time, so we're holding at this point as long as possible. > Good luck, > Emily Jackson, CG Jim 69/1+ > Emily Jackson > [log in to unmask] > > > Hello Jim and Emily, I am sorry that things are not going too well at the moment. It is a classic example of how a whole string of undesirable events force themselves on you, all because a neurologist has a particular point of view. I can accept that while there are two schools of thought, there must be a sizeable group of neuros who favour the save-it-for-later tactic (completely wrongly in my opinion). What really gets me angry is to see a PWP's quality of life sacrificed in support of that dogma. What has to happen before the neurologist accepts that he is trying to force a square peg into a round hole. I know that it is easier said than done, but one option that you should consider is : Change your neuro!! Regards, -- Brian Collins <[log in to unmask]>