Mary S.
Mary, m'friend, I think the problem with getting more responses to your
questions is that there have been SOOOOO many similar questionnaires posted
(and responded to) over the past 3 years!
Speaking for myself, (and I had frozen shoulder plus it's accompanying
bursitis in my dominant shoulder) <still get the bursitis>, if I never see
another one of these questionnaires it's too soon.
NOT meant as being personal, Mary, 'cause I don't mean to belittle your
efforts OR your desire to find that elusive "key" to PD....I'm just tired of
seeing the things and responding. So I ignore 'em... PLUS - I have little
faith in the PD Associations right now....
Barb Mallut
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From: Parkinson's Information Exchange on behalf of Mary Sheehan
Sent: Wednesday, October 22, 1997 9:39 PM
To: Multiple recipients of list PARKINSN
Subject: PD Survey Results
I was disappointed in the response to the PD survey. Only 18 people answered
the questionnaire. While I was most grateful to those who replied, I had
hoped to have a larger sampling. This leads
me to believe that either:
a) Very few people have a frozen shoulder as a first PD symptom. b) People
are not interested in my thesis that a pattern of symptoms might exist based
on the way PD presents in a group of individuals or c) PWPs are laid-back,
type B personalities who don't want to get involved.
That said, I'll present my findings, unscientific though they are.
1. The great majority of responders had their frozen (or painful shoulder)
in their late 40's or early 50's. { 3 in their 30's, 9 in their 40's, 4 in
their 50's, 1 in his 60's and 1 did not recall.]
2) 12 responders had their frozen shoulder on the dominent side, 4 had it
on their non-dominent side and 2 could not recall.
3) PD started on the same side as frozen shouder in 12 responders, on
opposite side in 2, on both sides in 1 and 3 could not recall.
4) PD advanced slowly in 10 responders, average in 5 and quickly in 3.
5) Symptoms varied; meds varied.
6) Everyone reported having a positive attitude [ more or less].
7) Everyone but 2 responders were on an exercise program.
I would like to try this again with a different first symptom and hopefully
get a better response. Watch for the next survey title. I know a pattern
exists there somewhere.
I will share any info I collect ( but not names ) with my neuro at the
Parkinson's Institute. Thanks again to those who replied.
Mary [[log in to unmask]]
