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To Dale, and others--- I regret if you got the impression that we would
write to NPF as spokespersons for anyone but ourselves....that is not
the case, for sure.  I was conveying to you Peter's immediate reaction after
I read to him the *whole long* explanation of the Florida experience, which
we had not seen before.  The NPF spokesperson gave the impression that Ivan's d
ecision to leave afdter the long wait was capricious, a simple matter of a
dinner date, while it was more complicated than that, it seems.  In a
post today Ivan seems to suggest that he MAY take some legal action to try
to clarify things. I would regret that, but it has to be his decision.
As for the NPF/APDA matter,we are aware of the scandal about embezzlement
from them  in the past, and haven't contributed for that reason. It does
pose a dilemma....and any amount we can give would be insignificant in
any case--just a token expression of our dissatisfaction. (Wouldn't do
much to help Ivan, either, as was suggested.)
Let me say that, until Peter's strong reaction, I had not taken part in the
*great Ivan debate* largely because, while sympathetic and aware of his
situation financially, I was "put off", as many were, by the tone of his
posts, and the continuing pleas that THE LIST do something.  There is
obviously wide divergence of opinion here re: the matter, and no one
should presume to speak for anyone but her/himself .
Incidentally, APDA claims to have gotten its act together, and as we are
going to see a MDspecialist at an APDA-affiliated clinic next week, it might
not be inappropriate in our case to give them a small gift.

This is just one more example of the various viewpoint on this worldwide list,
and I hope noone is offended by our point of view, even if they don't share
it.

Camilla Flintermann, CG for Peter, 79/8, Oxford,Ohio
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"Ask me about the CARE list for PD caregivers!"
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