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Dear List-family...

Yesterday was the third anniversary...  or as I call it, my "RE-birthday,"...
of my unilateral pallidotomy.  To this day, I'm SO thankful for having had the
surgery.

The pall. was performed by Stanford University Neurosurgeon, Dr. Gary Heit (my
hero!), at Loma Linda University Hospital, with Loma Linda's outstanding and
innovative Dr. Robert Iacono assisting.  I couldn't' have been in better hands
anywhere in the world.

The surgery was performed on the left side of my brain to relieve PD symptoms
on the right side of my body.  Beneficial results were immediate, and the
surgery itself was painless - I know, 'cause I was awake and undrugged
throughout the entire hour long procedure (I still find that hard to believe -
that I was undrugged, wide awake and in no pain!).

Today, my right side remains exactly as it was after the surgery - EXTERNALLY
there are no visible Parkinson's signs at all (right side only). There has
been no visible diminishment of the benefits I received from the surgery.

The disease has since moved into the left side of my body (darn it - the
"thang" just never stops, does it?!), and there are whole-inner-body symptoms
and sensations within my body on both sides (i.e., both vocal cords involved,
but not limbs on both sides - just primary left side).  I AM troubled by
profound daily fatigue.

Still - as bad as it can be, no day I've had since the pallidotomy has left me
feeling so utterly rotten and hopeless as I felt before the surgery.  Also, in
the three year interval since the surgery, the world of medical research has
FINALLY started bringing out new drugs to ease the Parkinson's symptoms.   In
these three short years (long years if you're awaiting a cure!) the I've read
about dynamic exploration and mapping of the brain, and that offers me hope
that in the relatively near future this beast-of-a-disease will be tamed.

While I get angry and frustrated by the PD symptoms as they develop on my left
side, the pallidotomy seems to have got rid of the
"Barb-imitating-a-slab-of-wood" look and feeling that I had prior to the
surgery (THANK GOD!), 'cause, when it came to stiffness, I ran a close second
to Muhammad Ali!!

Pallidotomy isn't a cure, but for ME, it gave me back the feeling that I was
back in the human race, the external PD symptoms on the right side were gone,
and I'm pleased I was given a chance to be a "reborn PERSON," as well as a
"reborn Parkie."

Barb Mallut
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