Print

Print


Mary,

You said:
>>My only purpose in starting the survey was to look for a pattern.

OK.  Researchers have discovered a pattern:  PWP before diagnosis are more
likely to have been otherwise in good health than is true for people with
other diseases.  They are more likely not to smoke and to follow good
health practices.  They are more likely to be obsessive and gentle and to
be extremely reliable people.  They are more likely to be depressed than
people with other diseases.

So where do we go from here?

Baldwin, 63/4
[log in to unmask]


----------
From:  Mary Sheehan
Sent:  Sunday, October 26, 1997 8:42 PM
To:  Multiple recipients of list PARKINSN
Subject:  You misunderstand purpose of survey

Baldwin,
In a message dated 97-10-26 02:35:07 EST, you write:

<< A large numerical correlation only suggests where to look for a
mechanism.
  But, you knew  you wanted to find a connection between a frozen shoulder
 and PD before you started the survey >>

Just want to clear up the purpose of my survey.  I wasn't looking for a
connection between PD and frozen shoulder.  I was trying to find a
correlation between PWPs first symptom of PD and their symptoms after a
number of years, the amount and type of exercise they do, the vitamins and
food supplements they take, their attitude and their rate of progression of
PD . I had hoped to do further surveys on first symptoms such as tremor,
gait
irregularities, micrographia, etc.

 Any other disease I can think of has a normal group of first symptoms and
a
normal rate of progression.  PD seems to operate with its own strange set
of
rules or lack of rules.  My only purpose in starting the survey was to look
for a pattern.  I had no preconceived  notion that I was trying to prove.
 I
did not intend to analyze the results.  I only planned to compute the
results
and, if the numbers were large enough to indicate a pattern, to turn the
findings over to a research facility for further study (if they were
interested).

I'm sorry to keep posting to the list on this subject but I feel that it's
important to think about the effectiveness of surveys, in case someone
wishes
to survey the list in the future.  My position, of course is that the list
is
a wonderful resource for research and it's in our best interest to answer
any
questions that might lesd to a better understanding of PD.

Mary