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Just in case you were sitting there worrying if I read all the messages you post on the List (I'm SURE ya spend HOURS every day worrying 'bout that, right?) <grin> I DID read your message to Carol about insomnia, and DID see where ya said you're scheduled to have a pallidotomy in 3 weeks! (Barb leaps outta the chair and dances wildly 'round her wee office in joy for her friend Stan!!!!!) YOU GO, GUY!!!! What's the exact date the surgery is scheduled for? And who's doing it? Please know that I'll be there in spirit, rooting for ya all the way! Mucho love and a buncha huggles... Barb Mallut [log in to unmask] ---------- From: Parkinson's Information Exchange on behalf of SRHOUSTON Sent: Thursday, October 30, 1997 6:54 PM To: Multiple recipients of list PARKINSN Subject: Carol's Insomnia and Dystonia Carol: Welcome to the club. You didn't indicate when you were diagnosed. I'm about to hit my seven-year anniversary and I'm almost ready to chop my left leg off. You describe a symptom that's fairly common among more advanced Parkinsonians, I believe. Muscles in your hips, legs and feet start contracting and releasing without your help! As I mentioned, my left leg is the villian. Its rhythmic dance hits body parts in sequence: hip, thigh, calf, foot, toes. It can drive you crazy, I know, This dystonia most commonly is a symptom of the disease. It only happens to me in the "OFF" state, very soon after my previous dose of Sinemet goes south. If it wakes my in the middle of the night, I take an extra Sinemet 25/100 roll back over on my right side (lying on my left side intensifies the action) and wait about twenty minute until the pill kicks in. During a daytime outage, I stretch out on the sofa and watch TV until my next pill kicks in. Being on my back seems to put less stress on the hip, which usually has the strongest contractions. How am I going to correct this torture? In three weeks, I'm scheduled to have a Pallidotomy. Hope this has been helpful. Stan Houston [log in to unmask]