 |
 |
To Rosemary and All.. Heck Rosemary.... THAT'S not 'banter" between Ken 'n me. Ken's a VERY serious person and never banters at all <grinning, ducking & running> and I'm too busy trying not to drown in the flood of paperwork sent to me by the Social Security Dept. - all requesting the same information from me and the assorted physicians at Kaiser, UCLA, Loma Linda et al - while being sucking under by PD symptoms. (grump, grump, grump) Not withstanding the above, I seem to never be able to respond to Ken's posts lately because MSN, my Internet provider, kicks every message I send to him via the list BACK to me as undeliverable. THIS MAKES ME CRAZY as I feel an obligation to TRY to brighten poor, serous Ken's day <grin> That said, in response to your questions about my Mirapex experience, nope, I've never had any hallucinations.. And since this was my SECOND try at Mirapex, I can assure you that 'm done with this drug! At this time I have no plans to try ReQuip. It takes about a month to six weeks for a new drug to make it onto the Kaiser Permanente drug formulary and I understand that ReQuip JUST came out to the public or is about to come out. I've just received a phone call from Kaiser's Neurology Dept. saying that they have a cancellation on Nov. 17 (at the ungodly hour of (9:30 am!) and I can have that appointment then, instead of after the first of the year as they'd previously scheduled me. At that time, I'll have a better idea of when Kaiser will have ReQuip in stock, and will have made up my mind if I want to give it a try. The problem with seeing a Kaiser neuro is that these are NOT movement disorder specialists. Plus apparently most of Kaiser's PD patients are quite elderly and live a whole other type of Parkinson's experience than I do. Since I don't fit into their picture of the typical Parkie, they just do NOT know what to do with me. I have to convince 'em that I DO have PD and it IS bad - but different-bad than the type had by most of their PD patients <deep sigh>. And so it goes... Barb Mallut [log in to unmask] ---------- From: Parkinson's Information Exchange on behalf of Rosemary Paul Sent: Friday, November 07, 1997 10:02 AM To: Multiple recipients of list PARKINSN Subject: Re: YIKES! Mirapex Withdrawal? Barb - I usually lurk but feel compelled to tell you that I do enjoy your banter with Ken B and whoever:)) Besides there is always an enlightning tidbit or two re PD. I am sorry for your side effects with Mirapex - have you, after being off for three or four days, decide to try it again. You did not have the hallucinations like Peter did you? That was an experience I wouldn't want to have. I am on tolcapone and have the distinction of being the only one in our study group to have a side effect of diarrhea. After finally getting the right mix of tolcapone and sinement would not like to give up. So its either put up or shut up. Keep the comments coming! ***************************************************** Rosemary Paul [log in to unmask] Community Services x3919 *****************************************************