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Janet, Barb & Fellow Listers, I'm not sure what I did to give Janet the impression that I am considering surgery only 7 weeks after my dx! I did have an appointment with Dr. Iacono, but only as a second opinion visit as recommended by my regular neuro, Dr. Mohamed. Dr. Mohamed trained under Dr. Iacono and has great confidence (as do I now) in Dr. Iacono's overall ability and wanted me to go talk to him to see if he had additional ideas for my treatment and to see if he was in agreement with all the meds I am taking. There was never any thought given to my having surgery. However, if/when my disease progresses to the point I think te surgery would help I suspect I'd be standing in line to have it done. Hope this sheds a little light on what appeared to be a budding controversy! Hugs and Cuddles to you all! Claudia [log in to unmask] 53/7wks janet paterson wrote: > hi fatta > > you wrote: > >I would just like to give my opinion on this matter, > >as an individual looking from the outside of PD in > >and having seen hundreds of patients undergo pallidotomy > >and essentially regaining a life they thought was gone forever. > >I tend to be one of those skeptics that shuns alternatives > >which seem too good to be true, but this is one case where > >I have seen the results for my self (As Thomas did). > >Fatta > > i hope i didn't give the impression > that i doubted the effectiveness of pallidotomy: > it's been proven effective in reducing > certain symptoms in certain patients > particularly those who have trouble > with symptomatic control using standard medical therapies > > your words "...regaining a life they thought was gone forever...." > describe the emotional 'high' that pall-ees justifiably feel > when they lose debilitating symptoms > but that "forever" > is still lurking in the background since > they still have parkinson's disease > and it is still progressing > > as an 'insider' > profoundly affected by this game and its strategies > i was concerned that claudia seemed to be considering surgery > only a month or two after her PD diagnosis > and when her symptoms are under control > > the only time i may have considered > anything to do with pallidotomy "too good to be true" > was when the marketing of it seemed to have little reference > to the entire context of parkinson's disease > and all of its potential treatments > > at the pubmed site > as an example of what i mean by context, i found: > references to parkinson's disease approx 6,000 > references to pd surgery approx 800 > references to pallidotomy approx 100 > references to pallidotomy + dr.iacono approx 10 > > your cyber-sibling [nine years, scar-free, and salary-free to boot] > > janet > > janet [log in to unmask]