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On Wed 19 Nov, Barbara Blake-Krebs wrote: > Hi folks - I have been asked by my neuro at the University of Kansas Medical > Center (KUMC) to be further evaluated for participation in this study. As I > am woefully behind in reading all my PD digests, I may have missed postings > on this, except for Stephan's posting belong. The question is should I try > this or not. Anecdotal experiences welcomed. I'm scheduled to go in Monday > to determine my suitability further. I will be happy to post my experiences > too. > Hello Barbara. I am now three weeks into my experience with Remacemide. (It may have been my earlier post on the subject which you saw). The trial is a joint USA/UK effort, taking place ( I believe) in eleven centres , of which the Queen's Medical Centre at Nottingham is one. The first two weeks was supposed to be a minimal strength starter, and frankly I could not detect any effect. For the last 4 days I have been on the next increment (The plan is to keep increasing the dose until I encounter some adverse effect). I think I am now beginning to see some improvement - not dramatic, and I COULD be receiving a placebo (25% of the participants are), so I will just wait patiently for the next increment. Incidentally, This is not a trial to get worked up about if you are looking for a permanent improvement, because whatever the result, ALL of the drug will be withdrawn at the end of the trial, and it will be about 2 years of further tests before the drug is cleared for general consumption (Assuming that no bad news occurs along the way. Regards, -- Brian Collins <[log in to unmask]>