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^^^^^^GREETINGS FROM^^^^^^^^^^ Ivan Suzman 47/10 [log in to unmask] Portland, Maine land of lighthouses 33 deg. F *********************************************************** Hi Michel, After all the insults, harassment and heartlessness the NPF is putting me me through, and with their continued lack of response to the $2200 they owe me, I couldn't agree with you more. Maybe I should be on a steering committee-to steer PWP's AWAY from the NPF and AWAY from Miami. I am still OUTRAGED and HURT, and it is dangerous for PWP's on our List to be manipulated by them. IVAN On Sun, 23 Nov 1997 20:13:17 -0500 [log in to unmask] writes: >In a message dated 97-11-22 19:50:06 EST, Charles Meyer writes: > ><< the announcement came out about the NPF Patients Congress & the > steering committee meeting in MIami. This apparently was the price >NPF > Charged for their funding of the Congress. >> > > >My intial reaction to this announcement was similar to the one >expressed by >Charles. >NPF appears to be preempting the whole movement, and I have strong >reservations about that. >My contribution to the efforts of the Udall Bill was minimal; I was >only able >to get Cong. Moran to co-sponsor and I contacted my senators and >several >local congressmen such as Bliley. Nonetheless, I resent the NPF for >taking >credit for most of this. >My primary duty is as a CG and I want this fight for a cure to go on >as it >must, on a unified and selfless front. > >Carpe Diem >Michel Margosis >