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Y'know, Bruce... while I found "Awakenings" fascinating, it didn't convey to
me what I know my fellow Parkies go thru each day in their respective lives.

It didn't show the struggle to exist outside in the "real world," with all the
little aggravations that take on major proportions due to the disease - silly
little oh-so-frustrating things like trying to tuck in a shirt or blouse and
have your hand stick inside the waistband of your slacks.  Or raising a glass
of water to your lips and finding the front of your shirt all wet 'cause your
tremor caused the water to slosh over the sides of the glass.

The movie depicted the lives of individuals who lived permanently in the
sheltered atmosphere of a hospital environment.  They had a Parkinson's
Syndrome caused by the flu epidemic in 1918 or there abouts. That's a LOT
different than how most - if not all - of us are living and different than how
most of us ended up with PD.

Mind you, I'm not putting the movie or Dr Sachs down at all.  It's just that I
feel Hollywood ISN'T "real life."

Barb Mallut
[log in to unmask]


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From:   Parkinson's Information Exchange on behalf of Bruce Warr
Sent:   Saturday, November 29, 1997 6:38 PM
To:     Multiple recipients of list PARKINSN
Subject:        Visabilty>

Barbara,

I agree with you that PD is an under-recognized disease. As I have mentioned
on more than one occasion, the students in my Office Automation class get
quite a lot of information on PD.  They can see the problems I have with
walking and grasping things, mobility, and the on-off phenomena.

One thing that has also helped is that "Awakenings" has been shown on TV and
cable several times this past three months. Several of my students watched
it who otherwise would not have had I not had PD. The same thing was true
when Dr. Sachs lectured at the university.

I realize that not all of us are as out-going as I am (would you believe
that I was extremely shy in my youth?) but if all of the PWP and CG would
take a little time to educate those around them about PD then it might not
be such an obscure disease.

(Of course I realize that another factor, especially for Young Onset PWP,
that would make them reluctant to advertise the fact that they have PD would
be its effect on getting/keeping a job.)

Bruce
56/9
Sinemet CR and Mirapex
<Now known as Alpha Centauri on the #parkinsons chat channel>

* My mind is already made up...don't confuse me with the facts! *