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-- [ From: Seymour Gross * EMC.Ver #2.5.3 ] --

In addition to the great suggestions expressed by Ivan, Ron, Dale, Jim,
etc., I think it's safe to say that our perception is influenced by the
newspapers, tv stations that come into our homes.  My view is that the
New York and Philadelphia papers often give coverage to PWP who have
died, and that they write about other people who have the potential to
be assets to the Parkinson community.  Research facilities are actively
engaged in fund-raising.  Hence, the many mailings we all receive asking
for contributions, and the yearly events many organizations sponsor.
Contributions for research go hand in hand with potential contributors
being made aware that all are susceptible, whether it be to heart
disease, cancer,or PD.  There are those who give of their time only, and
those philanthropists who give commitment, money, and make things happen
while also involving their friends and associates.  When these people
become involved there is media coverage and more funds for research.
And there is visibility.

During the past year I sent newspaper articles indicating potential for
contributions and involvement in Parkinson's research to NPF, APDA, and
PDF.  These were  opportunities for greater Parkinson's visibility.  I
received responses from none of the organizations.

Some of the articles involved: the death of Harry Helmsley of NY, the
real estate magnate, whose wife Leona contributed a large sum to the mid
-west facility where her husband, who was said to have had Parkinson's,
had been cared for;  at the beginning of the year Brooke Astor announced
that she was going to donate the balance of her husband's estate, $24,
000,000, in 1997 to worthy causes;  Elaine Dannheiser, the widow of
Werner, "who died in 1992 after a long struggle with Parkinson's
disease" contributed several valuable paintings to the Guggenheim Museum
, and a collection valued at $10,000,000 to the Museum of Modern Art in
NY.  In this morning's Philadelphia Inquirer there is an obit for John H
. Stewart, a retired bank executive who "died of complications from
Parkinson's disease."  The family asks that memorial contributions be
sent to his support group and to two other causes.

Opportunities for greater visibility are all around us.  Not knowing
people who know the people mentioned personally, it's appropriate for
professionals to make the contact.  I wonder to what extent this is
being done.

Dolores Gross
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