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>
>>>Perhaps as the 'lifers' or 3rd world of the 'unwell' we need the
>PD equivelent of a prison riot, or the abduction
>and 'murder' of 'rich western tourists' to grab the headlines.<<
>
Actually, all I had in mind re obits was a pamphlet with suggested text
( "died of x after a long battle with parkinsons") and some explanatory
text about the need for visibility of parkinsons.  This pamphlet would
be provided to end-stage caregivers (Through neurologists/ support
groups, etc), and to newspapers and funeral home directors (the folks
who write most obits)  via a mass mailing.

Does the NPF publicity rep have a position on this?  Would the NPF like
to sponsor such a project?


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