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Hi i'm Mark Steiner, 50 yrs old, and diagnosed in 1980!
One of the most active organizations in the legislative area is the
Parkinson's Action Network,based near me in Santa Rosa,CA.
It is headed by Joan Samuelson, a young lawyer with Parkinson's, who
campaigned in Washington for the  Udall bill, recently passsed, which
increased spending for research dramatically.
My brotherin law, David Rosenthal, is President of their board, and also a
lawyer.
Perhaps you would find working with them rewarding?
I dont have their number handy, but information (area code 707) will have
alisting.
best of luck,
Mark Steiner