 |
 |
To those who read this: Wonder of wonders. I set my AltaVista search engine to find the National Parkinson's Foundation, and it did. The address seemed to be http.:///www.parkinsons.org. I then addressed this address and behold I reached the home page of the Mulligan Foundation. What follows is a letter from the founder Steve Mulligan which I copied from the Mulligan Foundation site. Features of the Mulligan site are: A Parkinson registry; Quality if life articles; research institutions; and a list of the national organizations dedicated to PD. The Mulligan seems to be an umbrella foundation, perhaps self-appointed. THE COPIED LETTER FOLLOWS The Mulligan Foundation is a non-profit organization, which was founded in 1993 to provide medical research and quality of life information on Parkinson's disease to individuals affected by the disease, their families, friends, and caregivers. The Foundation also facilitates the exchange of medical research about Parkinson's in an effort to speed the process of discovering new treatments and, eventually, a cure. Although the Mulligan Foundation works independently of all other non-profit Parkinson's organizations in order to ensure the neutral presentation of information, it seeks to provide an electronic link to as many other Parkinson's resources as possible. As such, the Mulligan Foundation is not just another Parkinson's support organization, it is the clearinghouse of Parkinson's information on the Internet. The inspiration for this electronic network came from a conversation I had several years ago with my doctor during the early stages of my Parkinson's disease. Dr. Anne Young, Chief of Neurology, Massachusetts General Hospital, stated "the faster we can assimilate meaningful information, the faster a cure can be found."I was fortunate to have access to some of the best information available anywhere. I have started The Mulligan Foundation to offer the same opportunity to others. At the present time, the Mulligan Foundation is able to provide a link to Massachusetts General Hospital's Neurology Department and medical researchers at Emory University, who will answer questions concerning the pallidotomy operation. In the near future Dr. Michael Aldrich, Director of the University of Michigan's Sleep Disorders Center, will provide information on Parkinson's and sleep disorders. Several other distinguished physicians have also expressed an interest in participating in the Mulligan Foundation's information exchange program. In order to promote a better understanding of this disease and to help the medical establishment in its quest to find more effective treatment and a cure, The Mulligan Foundation is soliciting information from people with Parkinson's and their caregivers. Therefore, we hope you will take the time to fill out the survey that follows. Survey information will be distributed only to medical researchers and will otherwise be kept confidential. The Foundation also invites all corporations, organizations or individuals with information relevant to Parkinson's patients and researchers to share it with us. Although the Mulligan Foundation's initial offerings will be limited, with increased funding we will expand our information offerings and provide more answers to your questions as well as assistance in finding Support Groups, specialists, and medical facilities. We hope you will be patient as we begin work on this server and will return frequently to check on our progress. We look forward to your patronage. signed END OF LETTER. Is this our knight in shining armor? George Andes 64/15 and just biding my time