^^^^^^WARM GREETINGS FROM^^^^^^^^^^
Ivan Suzman 48/10 [log in to unmask]
Portland, Maine land of lighthouses 38 deg. F raini
***********************************************************
Dale,
Hi guy!! I am VERY concerned about you- are you pushing yourself too
hard???
First of all,Dale, a great big THANK YOU for your posts on Requip.
Mirapex has failed for me- way too much low blood pressure and
"wooziness.," so my neuro is starting me on Requip tonight. But I'm
kinda' ANTSY-a little scared, after ollowing your BATTLE,
You are a courageous soul and a real TROOPER. I feel for you, bro',
becauseyou are suffering. I get the most God-awful freezes- can last
three hours- and the pain and exhaustion are just unimaginable.
You mentioned my long and horrible journey to the NPF--I sure hope
your Social Security ordeal is easier than my Miami mess!!
Sometimes we just have to accept that we become basket cases. That
sure is tough when we give up our EXPECTATIONS. Hopefully you'll find a
soft landing in your basket.!!
PLEASE< Dale, don't overwork yourself. I feel that you shouldd GET
SOME REST and type us shorter hellos, and get some sleep!
PLEASE don't travel ALONE right now--PLEASE find friends to go with,
OK??
VERY CONCERNED about you,
IVAN SUZMAN 48/10
On Fri, 5 Dec 1997 05:55:06 EST DaleS99846 <[log in to unmask]> writes:
>12/3/97 Day 8th thru 12th on requip
>
>I have been so bad I could not keep up the diary. I have been frozen
>to the
>point I could barely initiate any action.
>During this period I titrated up to 1 mg 3x a day and today starts 1mg
>3x a
>day
>I've slept most of the time the last 3-4 days letting the tiredness
>and
>fatigue take its course. My freezing has effected my upper body more
>than
>lower part but both effected.
>
>I a woke at 4 am a little better than when I went to bed. Too tired to
>type
>more. Have apt. with social security examiner today at least they
>picked a
>good day for me to be a basket case at the time of my examination.
>4 am took 1 mg requip, 1 25/100 sinemet , 5 mg of eldepryl
>7a am took 1 sinemet
>10 am took 1 sinemet started to fell a little less stiff
>10:30 had apt with Soc. Sec Psych and I think I convinced him I was
>not
>depressed. I had typed out a list of 35 PD symptoms that I was having
>trouble
>with. Then went down stairs for regular medical exam by Soc. Sec. Apt.
>doctor.
>What an experience. I just could not help but think of Ivan's
>experience and I
>was not paying the freight or traveling the distance he did.
>My apt was for 11 am and I sat patiently in the waiting room till
>noon. At
>that point I asked the nurse how much longer it would be and ask to be
>rescheduled if it would be much longer. She said I would be next in
>and very
>shortly I was called in to a room for an Ekg. The attendant then left
>me there
>saying strip down to my underpants and the doctor would be right in.
>It was
>cold in the room and the floors were cold. Because I am diabetic it is
>important to control when I eat. I started to feel poorly so at 1 PM
>after
>sitting for an hour I got dressed and left the doctors office. There
>was no
>one in the reception area so I just walked out.
>
>1pm took noon medicines consisting of 1 sinemet and 1mg of requip and
>5 mg of
>elderpyrl.
>
>4pm took 1 sinemet
>
>7:15 took 1 sinemet
>8: PM took 1 mg of requip and 1 sinemet in preparation of going to
>bed.
>
>Days summary. Felt a lot better than yesterday when I was so stiff. I
>had
>trouble initiating actions all day. Could not bring myself to return
>calls I
>need to make to get ready for support group party next week. I even
>had
>trouble taking calls from my friends wishing me happy birthday. The
>lack of
>initiative really bothers me. The help line in Syracuse refereed me a
>new PD
>referral to the support group and another referral of a PD patient in
>the
>hospital. Just can not get motivated to make the calls back
>
>Dale Severance
>
