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Hello Mary Ann, > John, it might help if you explained that there are several kinds of PD, and > that your disease (I assume) is not in the same category as her > grandfather's. Also, she needs to understand that treatment for PD has > changed ****remarkably**** over the past *10 years.* Her grandfather > probably didn't have the benefit of Pallidotomy, and most certainly couldn't > take advantage of the new generation PD drugs that (as we have seen on this > list) have helped to remediate PD symptoms. Yes, I have sent her a few printed pages from the www.parkinsons.com website, and I also tried to explain how I see PD as compared to to MS. I did after all leave the doctor's office smiling. :) > In the end, she needs to recognize that she has very little understanding of > MS, if she thinks that PD is the more severe disease. She is most certainly > wrong in that regard. By the way, I am taking the first steps toward reporting my previous neuro to the healthcare authorities... I have come to understand that it is inexcusable to give the diagnosis MS based solely on a few blood tests and a spinal tap. She has by doing this kept me partially disabled (I cannot use my left hand for typing on a computer keyboard, and I work with computers) when ordinary levodopa could (and has) restored me to almost full function! Not to mention the fact that there might be other patients of hers that have the diagnosis MS, no medication and all the anguish that I've had these past 15 months, when it's not MS that they're suffering from... Horrifying. I have a new hope, thanks to a researcher at the Sahlgrenska hospital. I hope my last letter to Esther can convey that, and I hope she can share that hope with me. Sincerely, John