 |
 |
Dear Barb, When I first go to sleep there is some rigidity and slow movement but not any tremor. However, upon waking in the night I do sometimes notice a substanial tremor all over my body. This is odd, because when I am awake I rarely have any tremor. I guess odd is a good term! Just my opinion- yopd - Greg Leeman -----Original Message----- From: Barbara Mallut <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Sunday, December 07, 1997 3:33 PM Subject: Re: sleep and Parkinson's >How about when ya first wake up - that initial 15 or 20 minutes? Do you have >any PD symptoms immediately upon awakening? > >Surprisingly, many of us with PD spend that first 15 or 20 minutes (or a bit >more or less, depending upon the individual) symptom-free. And THEN the darn >PD symptoms kick in 'n "do their thing..." > >Weird disease, this PD! > >Barb Mallut >[log in to unmask] > >---------- >From: Parkinson's Information Exchange on behalf of JNewman101 >Sent: Saturday, December 06, 1997 1:28 PM >To: Multiple recipients of list PARKINSN >Subject: sleep and parkinsons > >I am puzzled by the lack of discussion on this subject. It's my impression >that one does not have symptoms of Parkinsons while asleep. Is there a >neurological switch that gets turned off? Maybe it just turns off parts of the >system. > >I drool by day, mostly because I forget to swallow. I drool just a relatively >tiny amount at night because I fall asleep before I make a big puddle, and I >swallow from then until I awake. I gasp for breath when I'm "off" by day - >even when I'm trying to get to sleep. Once the switch is thrown I breathe with >rythm. > >What goes on here? My arm is shaking like a vibrator is attached to it as I >pull up the covers to go to sleep, All is calm and quiet a few moments later >when I'm asleep. Not that it's easy to get to sleep. I prowl the house, try >different chairs, unoccupied beds, make something to eat, read. But once I'm >asleep the Parky demon is gone. > >Can someone explain? Maybe this is a back door entrance to solving the mystery >of Parkinso >