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Dear Mary, Thanks for your response. What is "postural kind" of low BP? What can you tell us about florinef? How does your mother take it;dosage,frequency,etc? What benefits has she observed? What other drugs does she take? Our current neurologist suggested wearing elastic stockings above the knee to keep the BP up.We bought a pair but haven't been using it.We feel that we need to get to the causes and not use a "bandaid". Our troubles started when we changed neurologists. Our current neurologist took Aliza off selegeline twice a day and perscribed half pill dosages at four hour intervals during the day. He claims that selegiline is bad for the heart. Our cardiologists deny this. We have seen an article which says selegeline strenghthens the heart. Previously,one quarter pill and half pill doses were used with no fainting spells. But Aliza did feel very weak and we weren't checking BP around the clock as we do now. She has a weak heart valve causing cardiac insufficiency. I also neglected to mention that Aliza has swollen feet which up to now we had attributed exclusively to her hear problems.We would like to understand the role of PD and PD meds on foot swelling.Aliza takes diuretics and is on a low salt diet.She has trouble with bladder control after taking furosemide 40mg.She also takes a half pill of kaluril(Amiliride HCL 5mg and Hydrochlorothyiazide 50mg). Note correction of one of the BP entries in my original post. Warm regards. Gil and Aliza Lieberman ----------------------------------------------- At 10:38 AM 12/18/97 -0600, you wrote: >Hello, Gil and Aliza - > >My mother has also had low blood pressure, esp the postural kind, apparently as a side effect of sinemet. She seems to have had some benefit from a drug called florinef. > >Mary Rack >cg for Mom 76/6+ > >---------- >From: Gil Lieberman <[log in to unmask]> >Sent: Wednesday, December 17, 1997 2:11 PM >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Subject: Low Blood Pressure Survey Results > >Dear Ivan, >We missed your Nov survey questions. >The following info relates to my wife Aliza,74/3- >Aliza has been hospitalized three times in the last six >weeks because of huge drops in blood pressure. >We now know for sure that it is attributable to the dopicar >meds she is taking here in Israel.One dopicar pill consists >of 250mg of l-dopa and 25mg of carbidopa. >During this period she was taking a half pill at 8AM,noon, >4PM and 8PM.The worst drops occur in the morning and occasionally >in the early afternoon about one hour after taking the dopicar. >Here is some typical data. > >17 Nov:Took half pill at 7:40AM,ate breakfast and at 8:35 AM felt very weak >and dizzy.At 8:37AM,her BP was 63/35 with pulse P=60.She didn't faint but felt >very weak and couldn't talk.At 9:00AM she felt somewhat recovered but had 70/37 >with P=74.The following are subsequent blood pressures for that day. >9:45AM 122/56 76 >1:40PM 134/78 80 >4:30PM 172/66 94 >6:30PM 194/89 100 >8:45PM 111/48 57 (after 8PM dopicar)(corrected entry) >11:57PM 157/83 > >14 Dec:After 8:00AM dopicar >8:50AM 96/52 60 She was near collapse,very dizzy,incoherent,eyes closing, >finger tips blue,Began to come out of it at 9:10AM. >9:17AM 49/31 68 >9:21AM 68/42 69 >9:31AM 69/35 68 >9:39AM 84/43 71 >10:33AM 172/77 73 >12:59PM 160/70 79 >2:14PM 178/74 73 >7:35PM 190/73 > >15 Dec:We decided to try six hour time intervals at 6 and 12 AM and PM. >6:50AM 126/61 73 >7:47AM 149/61 72 >1:03PM 184/85 76 >2:57PM 183/74 76 >No problems all day. > >16 Dec with six hour intervals >6:15AM 183/79 81 >6:50AM 86/49 76(Felt very dizzy) >7:42AM 126/59 79(Felt better) > >Big drops have also been observed in the PM. > >On 16 Nov,she took it at about 1:30PM >2:25PM 70/47 57 >2:30PM Almost fainted >2:33PM 98/50 78 >3:00PM 97/43 69 >4:50PM 152/68 90 >7:15PM !47/108 70 >9:50PM !81/83 85 > >On Oct 23,she fainted but we were't monitoring her BP. > >We are now trying one quarter pill every three hours to see if >this solves the problem. > >We would be interested in sharing info with people who have had similar >experiences. > >Gil Lieberman,CG for Aliza ><[log in to unmask]> > > >