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Dear Barb, I can tell you that the last symptome I had before I was dx WAS INTERNAL TREMORS - and I STILL have them more or less. Exactly in theese dayes I suffer dreadful because of tabl. TASMAR. My neuro told me is common for pwp. Yours "supporter" and one of your FANS :-)))))))) HAPPY NEW YEAR from Sonia NEVER GIVE UP ---------- > Fra: Barbara Mallut <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: Re: internal tremors > Dato: 1. januar 1998 20:47 > > Thanks for posting the commentary about internal tremors, Judith. Considering > how many neuros and other physicians (none movement disorder specialists, > excepting for Dr. Iacono) I've seen - the few at my HMO and the many that > Social Security has sent me to - NEVER seem to know what I mean when I say I > have "internal tremors." They've never heard of it and across the board > dismissed this very real and fairly common PD symptom as "just" being > depression or a figment of my imagination. > > Mind you, I never gone to any MD specifically seeking relief for that one > symptom as it's something I can live with. The only reason it gets > mentioned in the first place is when I've been required to complete > first-visit-paperwork and to list my current symptoms, surgeries, family > history, etc. > > Then the MD (or the Social Security judge who is a lawyer, NOT an MD!) claims > there's no such thing as an "internal tremor." AAAARGH! > > Sooooo... that said, I'm gonna print out a copy of your post and carry it > around in my wallet JUST to be able to whip it out and SHOW those skeptics > there really IS such a thing as an "internal tremor" for many PD suffers! > > Thanks again..... > > Barb Mallut > [log in to unmask] > > > > ---------- > From: Parkinson's Information Exchange on behalf of Judith Richards > Sent: Thursday, January 01, 1998 10:22 AM > To: Multiple recipients of list PARKINSN > Subject: internal tremors > > In the article re internal tremors posted by Alan Bonander, the following > paragraph has had me looking for the results of the study. > > "Further studies of the sensation of internal tremor are currently planned > at the U. of Miami to aid in both better understanding and treatment of this > previously undescribed symptom in Parkinson's disease." > > This is what I've been able to find so far ... > > Mov Disord 11: 3-7 (1996)[PMID8771060,MUID96366946] > > Internal tremor in patients with Parkinson's disease. > L. M. Shulman, C. Singer, J. A. Bean & W. J. Weiner > Department of Neurology, University of Miami School of Medicine, Florida > 33136, USA. > > Although sensory symptoms were not originally described in Parkinson's > disease (PD), in recent years it has been increasingly > recognized that painful sensations and paresthesias occur in > approximately 40% of patients. It has been our observation that > PD patients often describe a sensation of internal tremor, a feeling of > tremor inside the chest, abdomen, arms, or legs that > cannot be seen. We investigated the prevalence and characteristics of > internal tremor by administering a questionnaire to 100 > consecutive patients with PD and 50 age-matched controls seen in our > movement disorders center. A sensation of internal > tremor was present in 44% of this sample of PD patients and in 6% of the > control population (p < 0.0001). The presence of > internal tremor was unrelated to Unified Parkinson's Disease Rating > Scale score, Hoehn and Yahr stage, duration of disease, > or the presence of observable tremor. The frequency of other sensory > symptoms (aching, tingling, burning) was higher in the > PD patients with internal tremor (73%) than in those without (45%; p = > 0.005). Internal tremor is associated with anxiety in > 64% of patients (p < 0.0001). It was described as uncomfortable and was > unrelieved by antiparkinsonian medication in three > quarters of patients. A sensation of internal tremor is commonly > reported by PD patients and should be recognized as a useful > diagnostic factor in PD. > > Judith Richards > [log in to unmask]