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Yes, Yes, Yes, I have the same thing. It can be devistating to handwriting and to your blood pressure. The othe day I happened to have an appointment with my neruo at 9:30 and an appointment with my general doctor at 11:00. I was a mess internally when I went to my neuro, and not because I was nervous or affraid. My insides were at sixes and sevens, and my handwriting was attrocious. The nurse took my blood pressure and I noted that it was a little more than usual but not alarmingly high. When I went to my general doctor the nurse took my pressure and it was conciderably lower. I did note that my internal quaking was calmed down and I could relax. This is very deffinately a disarming sid effect of PD. It is not all of the time with me but when I have it I am a mess. So Barb, you are not alone Your quivering, quaking cyber-sis Elizabeth, 67/1 -----Original Message----- From: Barbara Mallut <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: 3. ledna 1998 14:15 Subject: Re: Music for my neurons >Phil.... > >I've REALLY been thinking about this topic lately (caused by necessity, NOT >just because it's such a fun and interesting topic!) <groan> and attribute >the increase in dyskenesia at odd times to be S.O.P. ( errrrrr... "standard >operating procedure, " for them of ya what ain't familiar with this acronym) >for some of us living with PD and is just another Parkinson's-related >phenomena. > >Some things, m'friend, just don't always have an easy answer (tho there prolly >is a long and complicated medical one if'n ya really wanna search for it). In >my opinion, it's enough that we discuss AND acknowlege these PD-related >anomalies amongst ourselves, bring them to light, and establish them as being >valid PD-related symptoms and/or quirks, mention 'em to our respective >neurologists (who will ignore 'em, of course) <rueful grin> and THEN get on >with life. > >I've found over the years, I've "mentally logged" these odd-ball symptoms as >they crop up in my life and try to ANTCIPATE them BEFORE I am at a point where >they interfere with my daily life. This type of anticipation has proved to >be a tremendous boon to my daily comfort level as it permits me to either >avoid and/or compensate for these specific PD symptoms before they happen. > >(ASIDE) And I don't care WHAT them doctors say 'bout certain invisible >Parkinson's symptoms - It's OUR own body, we LIVE in that body, and if WE feel >a particular symptom, then it's VALID! <stamping virtual foot emphatically!> > >Barb Mallut >[log in to unmask] > > > >---------- >From: Parkinson's Information Exchange on behalf of Phil Tompkins >Sent: Saturday, January 03, 1998 3:44 AM >To: Multiple recipients of list PARKINSN >Subject: Re: Music for my neurons > >Now that I think about it, I find I don't understand the increase in >dyskinesia I reported experiencing when concentrating on a complex >physical task such as playing an unfamiliar piano piece. > >Several people mentioned effects of an increase in stress or >excitement. I have experienced increased tremor in such situations, >such as during an engaging movie scene, or even when beginning a >meal! I associate increased tremor with insufficient dopamine, but >dyskinesia, based on what I've read, is the result of too much >dopamine. > >Perhaps what I'm experiencing is just an increased awareness of >dyskinesia, because it interferes with trying to achieve better >physical control of my movements. It's my body, but I guess I don't >necessarily have a good handle on what it's doing. > >Phil Tompkins >