 |
 |
I was a victim of SPAM. Can you tell me how to unsubscribe from this group? Jimmy -----Original Message----- From: Elizabeth Wands <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Sunday, January 04, 1998 6:27 PM Subject: Re: Music for my neurons >Yes, Yes, Yes, I have the same thing. It can be devistating to handwriting >and to your blood pressure. The othe day I happened to have an appointment >with my neruo at 9:30 and an appointment with my general doctor at 11:00. I >was a mess internally when I went to my neuro, and not because I was >nervous or affraid. My insides were at sixes and sevens, and my handwriting >was attrocious. The nurse took my blood pressure and I noted that it was a >little more than usual but not alarmingly high. When I went to my general >doctor the nurse took my pressure and it was conciderably lower. I did note >that my internal quaking was calmed down and I could relax. This is very >deffinately a disarming sid effect of PD. It is not all of the time with me >but when I have it I am a mess. > >So Barb, you are not alone > >Your quivering, quaking cyber-sis >Elizabeth, 67/1 >-----Original Message----- >From: Barbara Mallut <[log in to unmask]> >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Date: 3. ledna 1998 14:15 >Subject: Re: Music for my neurons > > >>Phil.... >> >>I've REALLY been thinking about this topic lately (caused by necessity, NOT >>just because it's such a fun and interesting topic!) <groan> and attribute >>the increase in dyskenesia at odd times to be S.O.P. ( errrrrr... >"standard >>operating procedure, " for them of ya what ain't familiar with this >acronym) >>for some of us living with PD and is just another Parkinson's-related >>phenomena. >> >>Some things, m'friend, just don't always have an easy answer (tho there >prolly >>is a long and complicated medical one if'n ya really wanna search for it). >In >>my opinion, it's enough that we discuss AND acknowlege these PD-related >>anomalies amongst ourselves, bring them to light, and establish them as >being >>valid PD-related symptoms and/or quirks, mention 'em to our respective >>neurologists (who will ignore 'em, of course) <rueful grin> and THEN get on >>with life. >> >>I've found over the years, I've "mentally logged" these odd-ball symptoms >as >>they crop up in my life and try to ANTCIPATE them BEFORE I am at a point >where >>they interfere with my daily life. This type of anticipation has proved >to >>be a tremendous boon to my daily comfort level as it permits me to either >>avoid and/or compensate for these specific PD symptoms before they happen. >> >>(ASIDE) And I don't care WHAT them doctors say 'bout certain invisible >>Parkinson's symptoms - It's OUR own body, we LIVE in that body, and if WE >feel >>a particular symptom, then it's VALID! <stamping virtual foot >emphatically!> >> >>Barb Mallut >>[log in to unmask] >> >> >> >>---------- >>From: Parkinson's Information Exchange on behalf of Phil Tompkins >>Sent: Saturday, January 03, 1998 3:44 AM >>To: Multiple recipients of list PARKINSN >>Subject: Re: Music for my neurons >> >>Now that I think about it, I find I don't understand the increase in >>dyskinesia I reported experiencing when concentrating on a complex >>physical task such as playing an unfamiliar piano piece. >> >>Several people mentioned effects of an increase in stress or >>excitement. I have experienced increased tremor in such situations, >>such as during an engaging movie scene, or even when beginning a >>meal! I associate increased tremor with insufficient dopamine, but >>dyskinesia, based on what I've read, is the result of too much >>dopamine. >> >>Perhaps what I'm experiencing is just an increased awareness of >>dyskinesia, because it interferes with trying to achieve better >>physical control of my movements. It's my body, but I guess I don't >>necessarily have a good handle on what it's doing. >> >>Phil Tompkins >>