 |
 |
---------- > Fra: Ivan M Suzman <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: Re: Invisibility/WCSH-TV/Anyone want to join me? > Dato: 7. januar 1998 02:12 > > ^^^^^^WARM GREETINGS FROM^^^^^^^^^^ > Ivan Suzman 48/10 [log in to unmask] > Portland, Maine land of lighthouses 32 deg. F freezing rain > *********************************************************** > Dear friends, > > Does anyone want to be on a TV show on Parkinson's, in Portland, Maine, > USA?? Read on, folks, but first, let me thank Jim Slattery of Australia > for sharing his pain and anger at our Invisibility> > > I HATE being marginalized and excluded and ignored and assumed to have > dementia , especially by YOUNG folks my age-I'm 48-well, for PWP's that's > hardly more than a pup. I HATE being underemployed or unemployed and > left like flotsam and jetsam on the waysides of the "busy" world out > there. > > As if WE PWP's aren't "busy!" > Or adequately intelligent. > > C'mon, world, WAAAAAAAAAKE UP! ************* YES I`m awake Ivan, so good to see you in such a high humour. > > Anyway- Diane Atwood of Channel 6 - NBC-TV -called me yesterday. It was > on the answering machine. I responded today and GUESS WHAT FOLKS?? She > wants me to be.on the WCSH--TV show she is preparing on Parkinson's. It > allows 3 guests. > > Oh, dear, Ivan the gadfly comes OUT of the closet to put a FACE on PD!! > SO I said "yes" to her. > > I told her all about the List--she was so excited by the end of our talk > that she even asked me for my (unprepared) thoughts about the SCRIPT of > the show. So I rattled on about brave folks like Romona, and the April > PD Awarenss Month proclamations, the pitfalls and limits of pallidotomy, > and the struggles we have with Mirapex, and the ROLLER COASTER of hope > and depression we ride. And of course, the UDall money-HOW would YOU > spend 100 MILLION dollars to cure and treat PWP's and to help their > families??? > > And, Diane was absolutely fascinated with the List. Now here is an > opportunity for List Power. > > ANYONE on the LIST want to fly to Maine and join me? ************* YES I would love to, but can`t afford money to go there :-)) but I would like to watch you on TV - IS IT POSSIBLE TO TAPE THE SHOW and send it to Denmark?? I don`t make fun. Sonia N DK ( Ivan the gadfly) in my mind you are not a "gadfly" if I understand the word right!!! > > > >