When you are diagnosed with PD, you generally start a heavy medical
treatment, and you are going to live with it for some 15-20 years. You have
to adapt to side effects, to cope with symptoms you don't know quite well
whether they are caused by the disease or by the treatment. You go through
periods of doubt about the intakes : too few, too many ? You get confused,
and it is not comfortable.
The best neurologist would be unable to help you, because no PD is like
another one, nor even the same as yesterday or ten days ago ; because you
cannot summarize within ten minutes what happened to you on every day of
the past three months ; and of course, because there is no way to measure
accurately how well, or how bad the treatment works.
We all react differently to that strange situation. My personal move was to
try and understand, anticipate, even control the response of my body to all
these tablets. Helped by an old, but solid scientific background, I
gathered whatever I could find about the effect of our medical treatment,
and I ended up with a tool (actually, a very simple Excel spreadsheet) that
I call MEG07. Those of you who might be interested will find a description
and a user's manual (in both French and English) on my personal site at
http://perso.wanadoo.fr/bernard.joly
All this is free of charge, and you carry full responsibility on whatever
may happen if you take my ideas seriously.
Any comments welcome
Bernard Joly
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http://perso.wanadoo.fr/bernard.joly
http://perso.wanadoo.fr/parkinson.francophone
