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> > I am a new member on this list. My father is diagnose with PD januari 1997. He is 65 years old. He started in > a program with the University of Amsterdam and they give him now Sinemet. I don't know the exact dosis, > according to the neurologist it must be enough because she is reluctant in increasing the dosis. > > My father has barely no tremors but he is nearly unable to walk. His muscles refuse to move. He is seeing a > fysiotherapist for this. It seems to get worser every week. In october/november he was able to walk every day > for about an hour, but now he can't walk for five minutes. He is using his bicycle, but just for short trips, > to run some errants. My question to you is: Is Sinemet the best medicine to use? Are there other options that > will make him walk again? > > Another problem is that my father has difficulty to sit on a chair. He tries every chair in the house and he > can't sit very long. So he now doesn't like to visit people, because when sitting hurts very much what can you > expect. Recognizes anyone this. Because the neurologist says that the cause cannot be PD. But what is the > cause. They did tests on his blood and urine. Everything is oke. But he still is unable to sit. > > The third problem is that my father sleeps very bad. He goes to bed and sleeps for maximum two hours and > afterwards he walks around in the house or takes a bath. He gets up at 5.30-6.00 and between 1.30/2.00 and > 5.30/6.00 he gets out of bed 5-6 times. The neurologist has no answere, and doesn't want to give him sleeping > tablets. She is afraid for addiction. > > My father is now desperate. He doesn't want to live like this. He can't sleep, he can't walk and he can't sit. > I, as his daughter, try everything what is in our power to help him, together with my sister and three > brothers. My mother tries to support my father as much as possible, but he isn't getting any better, in fact > he is only getting worse and depressed. He is diagnose with PD for one year, and in januari he was a cheerful, > active man, and know he is sad and everything he does is a burden for him. > > That's also the reason to be a member of this list. I read everything and I see you support each other in a > very positive way. I like reading the letters. I learn a lot. > > I hope you understand what I am writing. And I hope that there is someone who can help us. Thank you very > much. > > Gerdie Ketelaars.