I find the survey method interesting: No consent form, technical terms for
lay people.
1. Sex: Female
2. Nationality _____American--Caucasian____________________________
3. Age above 65
4. How long ago were You diagnosed with PD?
0-5 years ago
5. What medications are You taking at the moment?
Your terms are too technical: I take Permax and Artane for PD
6. In general, are You satisfied with the effectiveness of Your medication?
No
7. How often are You troubled by the following symptoms: F—frequently
A—all the time R--rarely
tremor---F
rigidity---F
slowness of movement---A
postural instability---A
dyskinesia---A
hallucinations---F
dementia---R
depression---A
dystonia---R
sexual problems---A
8. How disabling are the following symptoms: C—cannot function when
symptoms occur D---function with difficulty F---function OK
tremor---C
rigidity---C
slowness of movement---D
postural instability----C
dyskinesia---D
hallucinations---C
dementia---C
depression---D
dystonia---D
sexual problems---C
9. Have You ever been hospitalized due to PD symptoms? Which symptom(s)?
No
Comments--most troubling problem is frequent falling. Tremors are
tolerable.
-----Original Message-----
From: Suoniemi Samppa <[log in to unmask]>
To: Multiple recipients of list PARKINSN <[log in to unmask]>
Date: Thursday, January 08, 1998 9:37 AM
Subject: Research help needed
>Hi everybody
>My name is Samppa Suoniemi. I'm a Finnish researcher who is preparing a
>doctoral thesis about the unsatisfied needs of PD
>patients. To be more specific, my research deals with the shortcomings
>of current pharmacological treatment. In particular, I'm
>interested in which symptoms cause most problems for patients with PD. I
>have a survey attached to this message, which points
>out some vital questions that need to be answered. I would be extremely
>grateful for any kind of assistance concerning my research.
>
>
>
>
>Best wishes
>
>Samppa Suoniemi
>[log in to unmask]
>Fax: +358-2-3383 451
>
