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Barb >I guess I'm asking a lot of questions here... and more keep popping into my >mind. But basically, what this experience did was make me very conscious of >the fact there are lots of PWPs withOUT a Camilla or a Vivian or a Michel to >care FOR them as well as ABOUT there. What do we do if we're in that >position? (feeling like I've opened a "personal can of worms," here?) Oh boy, you sure did, and this thread keeps coming back. The whole issue of invisibility is hugely important and I would love someone like Ruth Pinder (a sociologist who writes about disability and chronic illness) to tackle it. I wonder if anyone knows her. I have read some of her articles and find them excellent. There are lots of PWP on this list who don't have a so-called full time "carer" I hope they will now talk. In the meantime I am keeping a mailbox with everyones threads on "Invisibility" and who knows what this soon to be retiring journalist-cum-editor will do with them.... Joy Graham