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Tami.... Bluntly, do you work for or otherwise have a monetary interest in any of the "NADH Sources" you're so busy - as an "herbalist" yet - referring our List members to use and buy? If so, I suggest you NOT act the part of a "snake-oil & universal cure-all" huckster/salesperson around here if you're REALLY here to find out PD-related information for your spouse. Frankly, your whole message looks to ME like the typical "make-a-fast-buck-online-from-the-desperate-chronically-ill-folks-there" kinda stuff that's regularly posted all over the Internet and that includes HERE! IF I've made an error in my judgment, I'm sorry, however, this REALLY smells like a hustle to me, and I wasn't born yesterday! Barb Mallut [log in to unmask] ---------- From: Parkinson's Information Exchange on behalf of TAMJON Sent: Wednesday, January 07, 1998 7:00 AM To: Multiple recipients of list PARKINSN Subject: Great NADH source Hello everyone, I'm relatively new to the listserve, as I have been apart of this group for only a few months now. When I signed up I didn't do an introduction. I'll take a brief moment here to so. My husband was diagnosed with early onset PD last August. He began displaying noticable symptoms when he quit smoking last January 1st. I immediately started doing research, and had him diagnosed correctly by April. (I do a great deal of medical research for writing purposes). It was at this time (April), I finally convinced my husband we needed ot see a neurologist. To make a long story short, it took 3 different neurologists and a multitude of what else -- tests -- before the last doctor finally put the name of Parkinsons on it. We were not shocked, since we were quite sure this is what it was from all my research and reading on it. I know they suspected it right from the start, but those darn doctors don't want to tell you didly until they are almost bonafide certain. Needless to say, had we not done any research and prepared ourselves, the diagnosis would have been a shock. They didn't even want to speculate about what it was to us, until I started rattling off all kinds of symptoms and facts about PD. One of the neurologists asked if I was a nurse or something, since I had so much knowledge. Only then, would he tell us what he was considering and what he wanted to rule out. Anyway, my husband is only 40 years old, but subtle symptoms began when our last child was born -- he was only 34 then! His symptoms are fairly mild and managable. The doctor put him on Mirapex and he responded favorably. He does have trouble staying a sleep at night, and is an earlier riser now. The neuro. said he would just require less sleep. Because of the insomnia side- effects of the Mirapex he has not been able to try selginine. The doc said this would stimulate him even more, as it has stimulatory effects. Therefore, I put him on NADH. I'm an herbalist, and have my husband taking a variety of herbs and vitamins. He has not had a sick day since he started on them over a year ago. (I gave him herbs to help him when he quit smoking, and expanded from there). He also never has constipation which I understand can be a cronic problem for PWP. He takes 1 capsule of fish oil a day, and it keeps everything moving. He has a slight tremor in his hands, his writing is micrographic, his hips and legs cramp up and get stiff after walking a distance, his voice is raspy, breathy, and trail off at the end of a sentence, and he gets wiped out on stressful days. He can walk farther now before the cramping sets in since being on Mirapex. It also eliminated the tremor that had started in his foot when driving. It hasn't helped with his speech though. I have to admit I'm scared to death about the future. He is so young to have this illness, and we have 3 young children to provide for. I think about the possibility of him not being able to work a full career, and then what would we do. This is not constantly on my mind, but harbors in the background. Hopefully, the supplements I have him on, and a healthy lifestyle will help to keep his progression slow. Is it possible for anyone who has this illness to remain classified as a mild case 25 years later? Is it inevitable that he will have whole body shaking and freezing when walking? Because it affects mostly his lower body now, does this mean in the future all lower body functions will be affected and deteriorate? Like bladder, bowels, etc.? Hey, I thought I said I would be brief? I guess I came up with a few questions for anyone who would like to comment, and help me feel better. But I would like to share a wonderful source for NADH for any of you who take this supplement. Also, if you would like more information on NADH (because you won't get it from a conventional doctor/neurologist) there is an informational website at: www.nadh.com. Just don't order the product from them as you will pay way to much. A good source of NADH that is enteric coated is made by Metabolic Response Modifiers. This company is even recommended by Dr. Julian Whitaker, M.D., if anyone is farmiliar with him. Anyway, there product is available from JBN ENTERPRISES. They are a mail order supplement company carrying a variety of vitamins and supplements. Not all there prices are the lowest -- I shop around, especially since I recommend supplements for others. The NADH from Metabolic Response are 5 mg. enteric coated tablets, item #96648, 60 tablets for $58.99. BUT WAIT, that's not the best part. They have a buy one, get the second one for a dollar deal. So, you can get 120/ 5 mg. tablets for $59.99! That comes out to 50 cents a tablet. This is a whole lot cheaper than Natrol's NADH which can be found for $34.99/ 30 tablets. That's a whopping $1.16 a tablet. Be sure to take your NADH on an empty stomach with water, at least 20 minutes before taking any other medications, vitamins, juice, coffee, etc. It is best to take in the morning, so you can feel its positive effects during the day. PWP should take up to 20 mg. a day, but will probably notice improvement on just 10 mg. a day. Response can be felt in as short as 3 days if taken as directed. This natural occuring supplement is used to treat many PWP in Europe. For some people this is there only treatment, as they respond so well. It apparently works better on those who are not severely disabled by the illness. The NADH energizes the remaining brain cells -- it cannot create new ones. So, for severely depleted brain cells, its theraputic effects are not as noticed. It does protect the ones remaining however. This treatment is also useful for those who have Alzheimers. Would you believe my husband's diagnosis came 2 weeks after my father-in-law's neurologist finally admitted to my in-laws that dad has Alzheimers? So we have AD and PD in the family. Both diseases are have similarities, but are different. Many of the drugs used to treat and help symptoms in PD are also used for AD. I find this most interesting. How I wish my father-in-law would be willing to try something. I have a list of helpful supplements he could try, along with the drug Aricept that is used for AD, but he and the wife are not interested. This I cannot understand. What does anyone have to lose in trying supplements? You only have the possibility of feeling better to gain. Oh well ... The phone number for JBN is: 800-487-2111. There hours are Mon. thru Thurs. 9 am to 10 pm EST, Fri. 9 am to 9 pm, and Sat. 10 am to 5 pm. They are located in PA. The item number again is: 96648 / 60 tabs for $58.99 / Buy one, get one for a dollar. They will include their catalog with an order. Thanks everyone for listening to me. Your comments here on the board make me laugh and make me cry, but help me to cope. My husband always tells me he's better with this than me. Tis so true. I hope I've been able to help some of you out who are interested in NADH, but refrained due to the prohibitive price. Give it a try, it may just help you feel better. Be proactive, that's my advice. Don't wait for doctors to recommend something because it won't happen, unless your neurologist is also a nutritionally educated one. Do they even exist? Take care all, Tami A. :)