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I don't know about everyone else, but I was glad to get the information that Tami gave about NADH. Really Barb, I think you were a little nasty about her listing. Didn't sound like she was doing anything wrong to me. I think we can all benefit from everyone else's knowledge. I really don't think she is connected, but if so what does it matter. If it will save me money all the better. Nancy B cg for Don 62/14. -----Original Message----- From: Barbara Mallut <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Wednesday, January 07, 1998 3:59 PM Subject: Re: NADH source/Response >Tami.... > >Bluntly, do you work for or otherwise have a monetary interest in any of the >"NADH Sources" you're so busy - as an "herbalist" yet - referring our List >members to use and buy? > >If so, I suggest you NOT act the part of a "snake-oil & universal cure-all" >huckster/salesperson around here if you're REALLY here to find out PD-related >information for your spouse. > >Frankly, your whole message looks to ME like the typical >"make-a-fast-buck-online-from-the-desperate-chronically-ill-folks-there" kinda >stuff that's regularly posted all over the Internet and that includes HERE! > >IF I've made an error in my judgment, I'm sorry, however, this REALLY smells >like a hustle to me, and I wasn't born yesterday! > >Barb Mallut >[log in to unmask] > >---------- >From: Parkinson's Information Exchange on behalf of TAMJON >Sent: Wednesday, January 07, 1998 7:00 AM >To: Multiple recipients of list PARKINSN >Subject: Great NADH source > >Hello everyone, > >I'm relatively new to the listserve, as I have been apart of this group for >only a few months now. When I signed up I didn't do an introduction. I'll >take a brief moment here to so. > >My husband was diagnosed with early onset PD last August. He began displaying >noticable symptoms when he quit smoking last January 1st. I immediately >started doing research, and had him diagnosed correctly by April. (I do a >great deal of medical research for writing purposes). > >It was at this time (April), I finally convinced my husband we needed ot see a >neurologist. To make a long story short, it took 3 different neurologists and >a multitude of what else -- tests -- before the last doctor finally put the >name of Parkinsons on it. We were not shocked, since we were quite sure this >is what it was from all my research and reading on it. > >I know they suspected it right from the start, but those darn doctors don't >want to tell you didly until they are almost bonafide certain. Needless to >say, had we not done any research and prepared ourselves, the diagnosis would >have been a shock. They didn't even want to speculate about what it was to >us, until I started rattling off all kinds of symptoms and facts about PD. >One of the neurologists asked if I was a nurse or something, since I had so >much knowledge. Only then, would he tell us what he was considering and what >he wanted to rule out. > >Anyway, my husband is only 40 years old, but subtle symptoms began when our >last child was born -- he was only 34 then! His symptoms are fairly mild and >managable. The doctor put him on Mirapex and he responded favorably. He does >have trouble staying a sleep at night, and is an earlier riser now. The > >neuro. said he would just require less sleep. Because of the insomnia side- >effects of the Mirapex he has not been able to try selginine. The doc said >this would stimulate him even more, as it has stimulatory effects. > >Therefore, I put him on NADH. I'm an herbalist, and have my husband taking a >variety of herbs and vitamins. He has not had a sick day since he started on >them over a year ago. (I gave him herbs to help him when he quit smoking, and >expanded from there). He also never has constipation which I understand can >be a cronic problem for PWP. He takes 1 capsule of fish oil a day, and it >keeps everything moving. > >He has a slight tremor in his hands, his writing is micrographic, his hips and >legs cramp up and get stiff after walking a distance, his voice is raspy, >breathy, and trail off at the end of a sentence, and he gets wiped out on >stressful days. He can walk farther now before the cramping sets in since >being on Mirapex. It also eliminated the tremor that had started in his foot >when driving. It hasn't helped with his speech though. > >I have to admit I'm scared to death about the future. He is so young to have >this illness, and we have 3 young children to provide for. I think about the >possibility of him not being able to work a full career, and then what would >we do. This is not constantly on my mind, but harbors in the background. >Hopefully, the supplements I have him on, and a healthy lifestyle will help to >keep his progression slow. > >Is it possible for anyone who has this illness to remain classified as a mild >case 25 years later? Is it inevitable that he will have whole body shaking >and freezing when walking? Because it affects mostly his lower body now, does >this mean in the future all lower body functions will be affected and >deteriorate? Like bladder, bowels, etc.? > >Hey, I thought I said I would be brief? I guess I came up with a few >questions for anyone who would like to comment, and help me feel better. But >I would like to share a wonderful source for NADH for any of you who take this >supplement. Also, if you would like more information on NADH (because you >won't get it from a conventional doctor/neurologist) there is an informational >website at: www.nadh.com. >Just don't order the product from them as you will pay way to much. > >A good source of NADH that is enteric coated is made by Metabolic Response >Modifiers. This company is even recommended by Dr. Julian Whitaker, M.D., if >anyone is farmiliar with him. Anyway, there product is available from JBN >ENTERPRISES. They are a mail order supplement company carrying a variety of >vitamins and supplements. Not all there prices are the lowest -- I shop >around, especially since I recommend supplements for others. > >The NADH from Metabolic Response are 5 mg. enteric coated tablets, item >#96648, 60 tablets for $58.99. BUT WAIT, that's not the best part. They have >a buy one, get the second one for a dollar deal. So, you can get 120/ 5 mg. >tablets for $59.99! That comes out to 50 cents a tablet. This is a whole lot >cheaper than Natrol's NADH which can be found for $34.99/ 30 tablets. That's >a whopping $1.16 a tablet. > >Be sure to take your NADH on an empty stomach with water, at least 20 minutes >before taking any other medications, vitamins, juice, coffee, etc. It is best >to take in the morning, so you can feel its positive effects during the day. >PWP should take up to 20 mg. a day, but will probably notice improvement on >just 10 mg. a day. Response can be felt in as short as 3 days if taken as >directed. This natural occuring supplement is used to treat many PWP in >Europe. For some people this is there only treatment, as they respond so >well. > >It apparently works better on those who are not severely disabled by the >illness. The NADH energizes the remaining brain cells -- it cannot create new >ones. So, for severely depleted brain cells, its theraputic effects are not >as noticed. It does protect the ones remaining however. This treatment is >also useful for those who have Alzheimers. > >Would you believe my husband's diagnosis came 2 weeks after my father-in-law's >neurologist finally admitted to my in-laws that dad has Alzheimers? So we >have AD and PD in the family. Both diseases are have similarities, but are >different. Many of the drugs used to treat and help symptoms in PD are also >used for AD. I find this most interesting. How I wish my father-in-law would >be willing to try something. I have a list of helpful supplements he could >try, along with the drug Aricept that is used for AD, but he and the wife are >not interested. This I cannot understand. What does anyone have to lose in >trying supplements? You only have the possibility of feeling better to gain. >Oh well ... > >The phone number for JBN is: 800-487-2111. There hours are Mon. thru Thurs. >9 am to 10 pm EST, Fri. 9 am to 9 pm, and Sat. 10 am to 5 pm. They are >located in PA. >The item number again is: 96648 / 60 tabs for $58.99 / Buy one, get one for a >dollar. >They will include their catalog with an order. > >Thanks everyone for listening to me. Your comments here on the board make me >laugh and make me cry, but help me to cope. My husband always tells me he's >better with this than me. Tis so true. > >I hope I've been able to help some of you out who are interested in NADH, but >refrained due to the prohibitive price. Give it a try, it may just help you >feel better. Be proactive, that's my advice. Don't wait for doctors to >recommend something because it won't happen, unless your neurologist is also a >nutritionally educated one. Do they even exist? > >Take care all, > >Tami A. :) >