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Leadership Council of the Parkinson's Alliance, Congratulations!! It sounds like a good start with the principals that we have discussed here on the list being adopted. I am anxious to hear more. Charlie Jim Cordy wrote: > > Parkinson Alliance > “an association of individuals to further the common interests of people > affected by Parkinson’s” > > The Leadership Council of the Parkinson Alliance (formerly the NPF Parkinson > ’s Patients Congress) met Jan15-18. Twelve Parkinson’s advocates > participated. Consensus was reached on all issues addressed to date. The > next step in the evolution of this alliance is to have teams comprised of > members of the Leadership Council meet with leaders of APDA, NPF, PAN and > PDF to discuss how we might together hasten our common goal of curing > Parkinson’s and helping those afflicted with Parkinson’s. A detailed report > will be made available shortly after those meetings. At this time we would > like to share the following results of our efforts: > > Mission Statement: To provide a structure to empower individuals affected by > Parkinson’s disease to have a voice in setting the national policy agenda > for research and patient services. > > Vision Statement: The Parkinson’s Alliance is an action-oriented group of > people directly affected by Parkinson’s disease. We include individuals who > are fervently dedicated to finding a cure for Parkinson’s disease and > providing patient services, to that end, we will develop and maintain a > national policy agenda with and for the Parkinson’s community. In unity of > purpose we collaborate with the mainstream Parkinson’s organizations and > with people who have Parkinson’s disease. Through state-of-the-art > communications at the grass roots level, we: > 1) advance the national policy agenda; > > 2) promote effective coordination among existing Parkinson’s disease > organizations, and; > > 3) empower people affected by Parkinson’s disease to make a difference. > > Jim Cordy > Pittsburgh > [log in to unmask] -- CHARLES T. MEYER, M.D. Middleton, WI [log in to unmask]