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Kathy Novosel--see post re: CARE list which I just sent to main PD list


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   Irma is frightened and I am trying to keep her informed without adding
>to the fear.  Our only support group in this area occurs in mid afternoon
>at quite a distance and I cannot get her there.  Irma couldn't take
>Eldepryl..weird psychological effects...and has been only on Sinemet
>and Amantadine...the doctor wants to start Mirapex in April...was
>wondering about peoples' experience with this.
>      Also, our neurologists in Lancaster don't get at all involved in any
>aspects of care or quality of life...they only deal with medications...we
>have no medical facility with any advice about technological helps or
>future nursing care needs.
>       I would like to...and will print out some positive, support type
>statements from anyone with Parkinson's for my mother to read.  She is
>an old-fashioned lady who does not understand computers and does not
>care to, but she is feeling isolated in her coping with the disease.
>          Thanks for your concern....
>                                   Kathy Novosel
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  Camilla Flintermann, CG for Peter 79/8
  Oxford, OH
  [log in to unmask]
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