 |
 |
Where to Start 1. Anyone interested in creating a CAT or having their current group designated a CAT should contact Michael Claeys at (800)850-4726. 2. Work within your local Parkinson's community to find people wishing to become active and participate in the CAT. 3. Designate a CAT leader and/or contact person (maybe the same individual). 4. Contact your Representative and two Senators. If appropriate, thank them for supporting the Udall bill in 1997 (PAN can provide information on your legislators). Provide them with information on Parkinson's disease, your group's interest, and the community's legislative priorities for 1998. (The CAT materials will contain this information.) The highest priority areas for establishing CATs are in the states and districts of the members of the Senate and House Labor/HHS Appropriations Subcommittees. Other priorities are the states and districts of the members of the full Appropriations Committees, and House and Senate Authorizing Committees, the Congressional leadership, and any Member with a particular interest in Parkinson's or medical research. While these are the top priorities, remember that every Member of Congress is important and should be encouraged to become a Parkinson's champion. CAT Leaders Given the greater degree of organization and communication sought by the CAT program, CAT leaders will require a solid understanding of the program, the advocacy materials and techniques used, and the federal legislative process. Leaders are encouraged to thoroughly review the materials provided, and to contact Michael Claeys with any questions. In addition to the basic advocacy training provided, PAN's June 1998 Public Policy Forum will include special advanced training sessions for CAT leaders. During the Forum, CAT leaders will also be asked to play a greater role training less experienced advocates. Feedback As with any community-based effort, the CAT program will only be as successful as the people who participate in it. The Network would appreciate your feedback on the Community Action Team initiative, and your suggestions for how to make it as effective as possible. Please send your comments to the attention of Michael Claeys, Parkinson's Action Network, 818 College Avenue, Suite C Santa Rosa, CA 95404. Telephone:(800)850-4726 Fax: (707)544-2363 email:[log in to unmask]