 |
 |
---------- > Fra: Barbara Mallut <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: Re: NEW GENE? > Dato: 29. januar 1998 03:32 > > FYI... It seems to me that just about EVERYONE not personally connected with > PD in some way on a regular basis believes that "the" PD gene has been > discovered and that a cure is right around the corner. ******* Hellllllllllllo Barb are you awake? :-)) yes you are right as always (almost) :-), people often tell me "Oh don`t worry Sonia, now they have new drugs aalmost every month and id DOES help - that kind people are told from the newspaper, and somtimes they advice me to have a surgery as Deep Brain el-stmulation, because certenley it MUST help me, they have been told fromTV-news. Sometimes I´m very "politely" and tell the people that`s not so easy as they think. Other times I`m loosing my very bad temper, most when the people goes on and know "more" about PD than I do. Other times people becomes very disappointed because I DONT shake :-)) because then I CAN`T suffer from PD, because you HAVE to shake - OH yes that`s the life :-)) still worth to live. > > > PHOOEY! I'm REALLY ready for that cure! <deep sigh> >************ and so am I TOO, have a very nice day, it`s a beautiful sunny day in Denmark. Sonia NEVER GIVE UP > > ---------- > From: Parkinson's Information Exchange on behalf of Camilla H.Flintermann > Sent: Wednesday, January 28, 1998 3:43 PM > To: Multiple recipients of list PARKINSN > Subject: Re: NEW GENE? > > My guess is that someone on his staff told him re: the family and he > thought it applied more generally--benefit of the doubt? > > > > >>Clinton last nite claimed " a gene has been found that causes > >>Parkinson." Fact or new lie? > > > >A search of the Medline research paper database shows no new gene links to > >PD. There was a familial gene connection shown in one Italian study of > >one family, and another is Spain. However, most of the /PD gene studies > >to date (over 600) show no differences between PD sufferers and non-PD > >controls. > > > >Wishful thinking, or a 'white lie' to promote support for the NIS > >appropriation bill? > > > >Jim > >------------------------------------------ > >Jim Slattery - [log in to unmask] > >CW PD Web - [log in to unmask] > >http://www.bec.net.au/~cwpdg/ > >------------------------------------------ > > > Camilla Flintermann, CG for Peter 79/8 > Oxford, OH > [log in to unmask] > * * * * * * * * * * * * * * * * * > * Ask me about the CARE list for* > * Parkinson's caregivers ! * > * * * * * * * * * * * * * * * * *