Dear Greg-- The feelings you express must strike a chord for most PWPs---and in some way also for CGs. You have well shown the ambivalence we feel, and the importance of "accentuating the positive"....and I'll bet you felt better for writing it! Thanks for sharing it with us. > > >Dear List, > > > >Just some of what I have felt. Feel free to critique. > > > >It comes to me in the night without warning. It knows no prejudice. It is >like an albatross around my neck that wont relent. The sheer weight I >feel on my shoulders; the heaviness of all my limbs; the staring from all >directions. They are all that masque my true feelings for myself, my >family and all that my mind sees. It is all encompassing. This >omnipresence, it infiltrates any type of barrier I resort to. It does not >sleep. It does not nap. It does not know a vacation. It robs any fine >motor control I possess. It hides any smile I may attempt. It changes my >diet. I am not regular. I feel compressed like I have been trash >compacted. It fatigues me. It depresses me. It is abusive and has no >conscience. > > >I fight back day and night because I will never give in to this villainous >plague. I take medicine. I have operations. I adapt. I continue to try and >smile through the camouflaging with my words. I give support. I accept >support. I vent my frustration in private. I may be stiff but never >rigid. I educate. I learn. I consult. I sleep. I nap. I have a massage. I >am an advocate. I am on the list. I will win someday! > >Regards, > > > >Greg Leeman 37/6 [log in to unmask] > > > > Camilla Flintermann, CG for Peter 79/8 Oxford, OH [log in to unmask] * * * * * * * * * * * * * * * * * * Ask me about the CARE list for* * Parkinson's caregivers ! * * * * * * * * * * * * * * * * * *