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Hello, friends - Diane and I have written back-and-forth a couple of times about her recent questions about her mum's condition. With her permission, I'm sending both lists a copy of her post to me that explains in more detail what is going on. Hopefully this will get her more specific answers! Mary Dear Mary, I am worried about my Mum. she is 62 years old and was diagnosed with PP about 3-4 years ago. She has been on Sinnemet for that time but recently got really really bad dyskinesia. Her neuro suggested Tolcapone which she has been taking for two weeks now with the hope in reducing the Sinnemet. Since taking Tolcapone she has felt very sick and has vomited twice. She is to reduce down to 3 Sinnemet. About a month ago she started hallucinating,seeing things that were not there. It was really worrying. I would be really grateful for any info or help. Many Thanks Diane > ---------- > From: Mary Rack > Sent: Tuesday, February 03, 1998 12:35 PM > To: [log in to unmask] > Subject: RE: My Mum > > Diane - > > is it ok with you if I forward your message to the entire PARKINSN > list? That way you should get more answers than just mine. (Do you > belong to the CARE list, too???) > > I hope your mother is working closely with her doctor while switching > her meds. Has she in fact reduced the sinemet while starting the > tolcapone? That seems to be very important. > > My mother also had trouble with dyskinesia and hallucinations, and > with paranoia as well. She didn't trust anyone! If reducing the > sinemet doesn't get the hallucinations down to a "reasonable" level, > ask your mother's doctor whether she can be given a drug specifically > against hallucinations. Two drugs used here are olanzapine (zyprexa) > and clozaril. Some PWP tolerate at least one of these drugs well and > find them helpful. And, since your mother is relatively young, > perhaps surgery is an option for her. > > I agree that it's very worrisome and even frightening to watch > Parkinson's progress in our mothers. It's also frustrating that we > can't do EVERYTHING to help them. I admire your search for > information and help for your mother! Please keep asking questions > (details are helpful). Also, I wonder if you are in touch with any of > the Parkinson's groups nearby -- if I remember correctly, you are in > England?? > > Best wishes for now, > > Mary >