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Brian.....

I've had PD for about 22 years, was diagnosed 14 years ago, have been on
Sinemet for 10 years, and had a unilateral pallidotomy 4 years ago (with
outstanding results) <thankfully>.

With today's available Parkinson's meds, the drugs are a "daily thing," and at
this point, with the available drugs, that's "daily," as in "forever." (the
lifetime of the patient) The surgery is a once or, depending,
twice-in-a-lifetime event.  Therefore, the monetary "investment" a person with
Parkinson's has in their drugs rises exponentially over the years, while the
"investment" in the surgery(s) is a "once or twice in a lifetime expense.

Also, as far as I know, anyone having a pallidotomy still is required to take
PD meds daily - tho often the dosage is reduced post-surgery.

My pallidotomy cost $30,000.  Goodness-only-knows how much my drugs have cost
(so far!), because I've always been able to get the drugs via my HMO at $7 for
a three month supply per prescription.  Since I take 2 types of Sinemet
(regular and CR) daily, plus one other drug, that'd be $21 every 3 months for
PD meds.  If II had to pay retail, I simply wouldn't be able to afford PD
drugs - or any other meds!  THAT stuff COSTS!

Sooooo, Brian, in my opinion, to compare the costs (as well as the
treatment-value) of PD drugs verses pallidotomy is like comparing apples to
giraffes.

It doesn't compute!

Barb Mallut
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From:   Parkinson's Information Exchange on behalf of Brian Skotko
Sent:   Sunday, February 08, 1998 3:24 PM
To:     Multiple recipients of list PARKINSN
Subject:        costs of pallidotomy

Dear friends,

I am an undergraduate a Duke University doing research on Parkinson's
Disease, mainly comparing levodopa treatments with that of pallidotomy.  I
would be most interested in any data on the relative expense of these two
treatments.  While I realize that individual treatments may vary, is
pallidotomy generally more cost effective then continued use of levodopa
treatments?  Or is the surgery, on the contrary, much more expensive in the
long term?

Thanks you so much for your help and concern.

Sincerely yours,
Brian Skotko
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 BRIAN G. SKOTKO
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 Phone: (919) 613-1427                  Phone: (440) 238-2964
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 http://www.duke.edu/~bgs2/brian.htm
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