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Maureen Allen wrote: > > Hi everyone, > > I have been reading the list for a very long time. It has been very > helpful to my husband and me caring for my mother-in-law Florence (83/10). > > I have another reason for writing the list. I have been funded by National > Insitute on Aging to develop a CD-ROM and Internet site for people with > Parkinsons and their caregivers. I am asking if I could talk with some of > you about sharing your experiences with PD and put that information on the > program. > > I am also looking for people to help write some of the information that > will be included in the site. You (meaning the list) are the most > knowledgeable people on this subject and I think that if I were able to > have a few of you helping write this site, it would be fantastic and > contain useful information for everyone. > > I would request that you response to me personally at [log in to unmask] > > Thank you > > Maureen > > Maureen Allen, RN-C MPH > Research Director > Clinical Tools, Inc > 5001 Baum Blvd Suite 720 > Pittsburgh, PA 15213 > Phone: 688-8970 Fax 688-9493 > Email: [log in to unmask] Maureen, I am quite interested in any project that will attempt to provide valid and accurate educational material about Parkinsonism. The pharmacokinetics needs to be summarized by the Pharmacy profession. My and "our" conjecturing about the optimizing of medicating - including food interactions - is obviously in need of expert opinion that seems non-existent or reticent. An expert or two should be funded to summarize the state of the art - and outline what we need to learn. I hope that the funding is significant and sufficient to provide both the best conjectures about the primary medication, levodopa, and specifics known about each of the specific tablets now available. There should also be experimental data gathering via planned experiments with intent to optimize the patient's ability to learn how to monitor and optimize his/her medication regimen - and to enlist improvement in the pill forms manufactured to be easier to optimize dosing. My request in response to your request is to ask that you disclose the scope, timetable, commercialization, availability to the public, and details of the funding and the funding source, the National Institute on Aging. Is the Institute on Aging a government entity? Who will own this CD? How are the CD and web site inter-related as planned by Clinical Tools, Inc. Is Healthguide another name for the corporation? sincerely, ron -- Ron Vetter 1936, '84 PD dz paradise is feeling good, not a place to go [log in to unmask] http://www.ridgecrest.ca.us/~rfvetter