Print

Print


I have been off the list for awhile now so forgive me if i have missed
anything. I would like to repeat a question I posted a few months ago.
My mother was scheduled to have a pallidotomy through northern CA Kaiser,
in San Rafael in Sept. last year. She had already been through all but the
last of the pre-op appts. Everyone involved had invested alot in the
procedure. We were all very happy with the medical team up there (we live
in southern CA.)
But in Sept Kaiser stepped in and announced the procedure was being moved
to Sacramento and the schedule was up in the air. Well, even now we have
had no notice, no letter, no phone calls giving any definite plans. It is
one of the most frustrating and infuriating situations. My father made many
phone calls up north, but the nurses say only that they don't know anything
either.
Meanwhile we found out that Kaiser would pay to have the procedure done at
USC in Los ANgeles. This is close to my parents, more convenient. However
so far we know so little about the program there. After so much involvement
up north, so much preparation for getting through the pallidotomy, in both
a physically and emotionally supportive atmosphere, i fear the situation in
LA may be very impersonal.
I asked the group previously if anyone knew anything about the program at
USC. I ask once again, as no one seemed to before. Now it seems more
imminent, with mri appts. on the horizen. The surgeon will be Dr. Dogali,
formerly of UCIrvine.
THe nurses up in northern CA didn't know anything either, but said go for
it, as they didn't know when they would be able to help.
I want to be supportive of my mom, but i don't feel very confident with the
situation in LA as of yet.
debbie
[log in to unmask]