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On Mon 16 Feb, kees paap wrote: > Hi listfriends, > > 6 More days to go before Faye and I get married. In stead of my brother or > my son, am I myself the groom. I am not that stressed yet, but I can assure > you that the tension is there. I am much more and longer "off" and stiff > than before. Taking more Sinemet will get rid of my "off" periods and more > Permax will take care of my stiffness, but the disadvantage is the > dyskenesia. Taking more medication makes me a victim of dyskenesia. I > prefer to be "off" above the very tiring dyskenesia. Of course the best > thing that can happen is the cure, but I'm afraid it will not be found > before Saturday. > > > Warm greetings, > > > Kees Paap > > 48/8 yrs/kick in sinemet 62.5mg/sinemet Cr 5x125mg/permax 4x1.0 mg > > > Hello Kees, First, my best wishes to you and your bride. I understand your concern about the way that the stress of the event may cause you to spoil the event, and you I thought you might like to consider something I discovered some time ago: I have attended the AGM of the Parkinson's Disease Society for several years, and had begun to notice that I always had trouble with my meds, even though I was taking doses which work fine at home. I finally realised that I was always overdosed during those times and the reason was that I was high on Adrenalin! Now it may sound a bit crazy comparing an AGM to a wedding, but if, like me, you enjoy meeting people, maybe its not so differrent in terms of stress at a basic level. So at the most recent AGM, instead of taking my usual over-lapping doses which give me a steady On condition at home, I switched to an 'As Required' philosophy. i.e. I only took a tablet when I could just detect that the previous tablet was wearing off. Normally, that would mean that I was going to be off for about half an hour before the next tablet caught up, but this time, nothing happened! Throughout the 2 days of the meeting I was perfectly controlled AND when I counted up at the end of the day, I had only used HALF my normal amount of Madopar. (My normal dose is 1.5 tablets of Madopar 62.5 evey two hours.) Over the next day, the effect slowly wore off, and I did not appear to have suffered any long-term damage. I have used the trick several times since then, like when I am giving a talk on PD to a room full of strangers: I deliberately underdose myself at my last tablet point before the event, forget the clock, and wait until my body tells me its time for another tab. - And always, that adrenalin surge carries me through the stress (which of course is significantly reduced because my arms and body are not flailing around due to dyskinesia.) I know this might sound a bit crazy, but all I can say is it works for me. I also know how tempting that little voice is which says 'Perhaps one extra tablet, just in case ....' - It is definitely the wrong way to go. Whatever happens, I'm sure you won't allow it to spoil your big day, so good luck again Regards, -- Brian Collins <[log in to unmask]> 58/19