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What I find astounding about these stories is that it only took me maybe 1/2 day to get caught up on the basics of PD and the prognosis. How is it that a neuro could be so off? Debbie White [log in to unmask] > > > When my wife finally figured out that I had PD we went to my GP and > told him. It took months to be referred to a neuro, have an MRI (and > other tests) and finally be told that I had Parkinson's. The neuro > was cold and distant and expanded that there was no cure, that PD is > progressive, that I should prepare to quit my job, get a house that > is wheel chair accessible, prepare to surrender my drivers license, > etc. I left, prescriptions in hand, speechless and in a daze. He > told me nothing about Parkinson's; nothing about the Parkinson's > organizations, nothing about the movement disorder clinic and the > fine research group located right in our own city, and did not give > any written pamphlet or information. I am still astounded that this > type of treatment can and does take place. I don't know how to teach > neuros sensitivity but I do know how to change doctors! > > Certainly a few select pamphlets are in order! > > I changed neuros and discovered all the info available on my own > starting with the local library which led to the National Parkinson > Foundation and to Dr. Calne's group and on and on until I found this > wonderful "List". > > I still live in the same house, drive, work, travel etc. the same as > when I had undiagnosed symptoms. I am on medication now also. > > Good health.................Murray 53/4 > (symptoms for many years before) > . > [log in to unmask]