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George,

The brochure or pamphlet was on the YOPD organization and was with a
group of brochures in the neuro's waiting room.  His assistant showed
it to me along with other pamphlets on neurological disorders.
My neuro also encouraged me to join a support group.

I have felt so lucky with my neuro.  He is not a movement specialist,
however, there is no movement specialist in our area (the nearest one
is in the Bay Area over 200 miles away).  He admits what he does not
know, and finds answers for me.  He has always been very straight
forward about the meds, the prognosis, and at each visit encourages
me to tell him exactly how I feel and what has been going on with me.
He has also encouraged me to take control of my meds, telling me that
I am the only one who really knows when they are working and when
they are not.

One more thing, about your packet.  It is a good idea, however I
agree that surgery info should wait until after a person has settled
into the diagnosis.  The thought of it still scares me completely.
When I began Requip the sample packet was a rather large box with
pamphlets, company info, and a short video of people talking about pd
and their reactions to the med.  I realize this was primarily promo
for Requip, but it was a great package and the video left me with a
feeling that I am just like other people who also suffer from pd.
don't forget how to laugh (and do it often)
Marling McReynolds
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