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Ivan, I hope I am not too late to add my name to your ever expanding fan mailing. My check will be in the mail tomorrow. I belong to a support group and have been talking up this listserv. I believe this video will be very helpful to all of us. Enjoying your postings Elizabeth -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Monday, February 23, 1998 3:08 AM Subject: Thank you all >^^^^^^WARM GREETINGS FROM^^^^^^^^^^ >Ivan Suzman 48/10 [log in to unmask] >Portland, Maine land of lighthouses 26 deg. F >*********************************************************** >Dear friends, > > How my life is changing! It has been an inspiration and still is, as >the videos slowly make their way out to you. 76 videos ordered - 11 >today alone. I could never have dreamed of anything better happening to >me. > > Further orders can be processed, because I am sure more can be made. >At the same time, the assembly line needs a little breather!! This >video star has been asked to head up the World Parkinson's Day effort in >Maine, by the state's support group President, carepartner Carl Barker. >Nancy and he are in Arizona and they have written me with that request, > > Tolcapone is coming out and I want to try it, since i'm back up to 1400 >mg of levodopa and 335 mg of carbidopa per 24 hours. I don't get >extended sleep, and average 12 hours "on," 6 "hours "off" and a total of >6 hours sleep per 24 hour day. My "offs" are too deep and tiring, and >painful. > > PLEASE keep commenting on the videos. I feel that we ALL gain so much >from public comments posted to the list. > > I want to thank so many of you. Yesterday morning, a computer crash >occurred, and my Feb 10 to 20 messages disappeared from the screen. I >guess they're in the hard drive somewhere. Please forgive me if I don't >manage individual responses to each of you at this BUSY moment. > > Could Maryhelen Davila and Martha Rohrer re-send their long letters--I >need them and want to reply ASAP. Dennis Greene, I am working on a plan >to get PAL format donated so that the possibility of a much cheaper video >can happen for Australia. > > Thanks again to each and everyone of you for your beautiful faith in >me. > > Kees Paap,,,thank you for your dream, your poem for Muhammad and Lonnie >Ali ( there's always a care-partner to remember) > > More tomorrow > > Thank you all again and thank God I have been blessed with the voice I >still have. > > A closing thought--don't forget to fight for the full funding of the >Udall bill. Please contact your Senators and Representativees and the >President and ask for the $100 milllion to be assigned NOW. We musn't >wait silently. > > Thanks everybody, > >Ivan Suzman 48/10 >