Ron:
I'm very interested in the question of unnecessary medication. I have
wondered what would happen if Alec stopped certain meds. I
suppose I should ask the doctor (Alec is inclined to do what the
doctor says--at least intend to!). But the dyskenesia sometimes
seem so related to the meds, I can't help but wonder. I have read
recently about "holidays" from medicine. Thank you for your
contribution; it has given me something to move on.
Jo
Donna:
I just switched from Requip to Mirapex (this very day). Requip gave
me gas
and made me sleepy/groggy all day. Also caused me to twitch in
the morning.
It's strange that you mention how bad your father feels only one year
after
dx. One year after dx, I too felt like crap. Then, I cut out the sinemet
and the permax. I was only left with Eldepryl and a bunch of
supplements.
I immediately felt 85% better. It's been 2.5 years now and I am still
questioning whether I should take any other medications (e.g.,
mirapex).
This is not a boast. It is merely recognition that PD medications can
often be worse than the disease. Also, their side effects are often
indistinguishable from PD symptoms. My neuro is a firm believer in
undermedication.
I hope that this observation helps.
Ron Reiner (59/2)
The only solid reason I have is to regain some semblance of
handwriting. I
just got a new job and I find myself doing a lot of math
At 04:44 PM 3/6/98 -0500, you wrote:
>Hi ... I think my computers are back and I'm resubscribed.
>I will get to those of you that sent
>personal messages this afternoon - thanks for the support - being
off-line
made
>everything worse.
>
>Anyway - anyone on Requip ? What dose ? My dad recently
switched from Mirapex
>to ReQuip. This is his third week @ 3 25mg pills 3x a day. He's
found it
>best to take the last three very late (11PM) since it makes him
sleepy anyway
>this has improved on his sleep. (He was ok on Mirapex but when
switching he
>nearly drove my mom nuts being up all night !)
>
>But he still isn't feeling well - nausea depression/confusion - leg
pain.
>I think the Mirapex was doing better - except it lowered his BP and
made
>him dizzy - if its not one thing its another.
>
>But its been a year now since his DG - and I hate to say it but he's
had
>maybe one good day ! He can't keep exisiting at this level (or lack
of)
>quality of life.
>
>ANybody have good experiences - advice ? We'll try anything.
>
>I want to switch N - but parents feel one is like another "what can he
do
>if the meds don't help".
>
>thanks for support
>
>donna
>daughter of PD dad 74/1 Mir-> Requip (plus Serzone)
>
>---------------------------------------------------------------------------
---
>- Donna Bassolino-Klimas, Ph.D.
> Bristol Myers Squibb Pharma. Res. Inst.
> Department of Macromolecular Structure
> P.O. Box 4000 Room H3812
> Princeton, N.J. 08543 4000
>
>** New phone # at Hopewell Facility
>
> (609) 818 - 4413
> INTERNET: [log in to unmask]
>
>
>
>---------------------------------------------------------------------------
---
>- Donna Bassolino-Klimas, Ph.D.
> Bristol Myers Squibb Pharma. Res. Inst.
> Department of Macromolecular Structure
> P.O. Box 4000 Room H3812
> Princeton, N.J. 08543 4000
>
>** New phone # at Hopewell Facility
>
> (609) 818 - 4413
> INTERNET: [log in to unmask]
>
>---------------------------------------------------------------------------
---
>
>
