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I, too, have been disapointed by the lack of response from the list. I hope you are doing more than I see. Even my friends from around here and even from Canada (US citizens) are calling. I have wondered if you think that you or your loved one are too old to benifit. If so, remember there are plenty of young onset people on the list and those not on the list. Nita Anders [log in to unmask]