John...
I don't think it's just the folks in Utah who have no idea of the number of
Parkies in that state. I've always suspected that nowhere in the Northern
Hemisphere do any local, state, provincial, or federal governments a CLUE as
to the number of persons with Parkinson's residing in there.
Further... I betcha that none of the major Northern Hemisphere Parkinson's
associations have even so much as a HINT of the number of people with PD in
the USA and Canada.
I can't begin to count the number of times I've seen the number of Parkies in
the US alone estimated as "between 500,000 and 1,500,000." That's NOT what
I'd call an accurate estimate!!
Anybody care to take a guess at how many PWP's there REALLY are in the USA and
Canada??? I bet it's numbered in the several millions, when you count those
of us who are undiagnosed because their MDs believe the patient is too YOUNG
to have PD, therefore missed the proper diagnosis, or doesn't have the
"classic PD tremor," or the MD knows the patient HAD Parkinson's but won't
tell 'em that for another 6 or 8 years when that poor suffering soul finally
BEGS the doctor to tell 'em what's wrong...
What.... MOI a cynic?
Barb Mallut
[log in to unmask]
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From: Parkinson's Information Exchange on behalf of John Lees
Sent: Wednesday, March 25, 1998 9:37 PM
To: Multiple recipients of list PARKINSN
Subject: Have you tried this?
As far as being visible we mite try bumper stickers.
How about getting local talk radio shows to air discussions about the Udall
Bill and mention PD recognition day.
In Utah one of the local support groups is trying to get the Gov.
to proclaim April- 19 as PD recognition day . I am trying to help by
getting information. The first information I have discovered is that no one
in Utah has a clue as to how many people in Utah have PD.
I have not given up yet. If some body out there has a clue as to
where the information is available I could use the help
John Lees
ps
GBWY
