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Dear List members - this is my first message to the list, although my =
partner Peter and I have been keen list readers for some time, in spite =
of being cut off for a while due to problems with our ISP
I am 50 years old having first been diagnosed with Parkinsons in 1990. =
We live in North Notts, in the UK and have experienced real problems in =
obtaining information and support from the Neurology department in our =
nearest major hospital, which seems more interested in research than =
patients.
Currently I am taking 3 100mg Tolcapone at 6 hourly intervals and 4 =
125mg tablets of Sinnemet CR daily. I have reduced the Sinnemet CR from =
7 which I was taking before starting Tolcapone in November
I am not experiencing side effects such as nausea or bowel problems from =
the Tolcapone but I am experiencing 2 problems at the moment=20
One is that I am simultaneously experiencing symptoms of underdose =
of levodopa (poverty of movement) and overdose of levodopa (stiffness). =
I have tried altering the timing of my sinnemet in different ways but =
have not been able to change this.
My greatest problem has been an increase in tiredness - I am feeling =
much more tired than before, this is especially so in the evening but =
also is happening much more during the day. This is a particularly =
difficult problem for me as I care for my 17 year old son who has severe =
learning difficulties and a severe heart condition - there are many =
times in the day when I am feeling whacked out and resting is just not =
possible
If there is anyone on the list who has experienced similar problems from =
the Tolcapone I would really like to hear from you or if there is anyone =
who thinks I may be barking up the wrong tree and can point towards a =
different solution to these problems please get in touch.
Love to you all =20
Rose
[log in to unmask]
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<DIV><FONT color=3D#000000><FONT size=3D3>Dear List members - this is my =
first=20
message to the list, although my partner Peter and I have been keen list =
readers=20
for some time, in spite of being cut off for a while due to problems =
with our=20
ISP</FONT></FONT><FONT size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000><FONT size=3D3></FONT></FONT><FONT=20
size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>I am 50 years old having =
first been=20
diagnosed with Parkinsons in 1990. We live in North Notts, in the UK and =
have=20
experienced real problems in obtaining information and support from the=20
Neurology department in our nearest major hospital, which seems more =
interested=20
in research than patients.</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>Currently I am taking 3 =
100mg Tolcapone=20
at 6 hourly intervals and 4 125mg tablets of Sinnemet CR daily. I have =
reduced=20
the Sinnemet CR from 7 which I was taking before starting Tolcapone in=20
November</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>I am not experiencing side =
effects such=20
as nausea or bowel problems from the Tolcapone but I am experiencing 2 =
problems=20
at the moment </FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3> One is =
that I am=20
simultaneously experiencing symptoms of underdose of levodopa (poverty =
of=20
movement) and overdose of levodopa (stiffness). I have tried =
altering the=20
timing of my sinnemet in different ways but have not been able to change =
this.</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3> My =
greatest problem=20
has been an increase in tiredness - I am feeling much more tired than =
before,=20
this is especially so in the evening but also is happening much more =
during the=20
day. This is a particularly difficult problem for me as I care for =
my 17=20
year old son who has severe learning difficulties and a severe heart =
condition -=20
there are many times in the day when I am feeling whacked out and =
resting is=20
just not possible</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>If there is anyone on the =
list who has=20
experienced similar problems from the Tolcapone I would really like to =
hear from=20
you or if there is anyone who thinks I may be barking up the wrong tree =
and can=20
point towards a different solution to these problems please get in=20
touch.</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>Love to you all =
</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3>Rose</FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 face=3D"" size=3D3><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"" =
size=3D3></FONT> </DIV></BODY></HTML>
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